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Resource documents are organized by category. If you review a document, please take a moment to complete the short evaluation questionnaire, which will help to maintain a library of documents that add value to your project. Feel free to submit documents you think may be suitable for addition to the resource library by e-mailing Christine Eby.

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Welcome to the Family Support 360 Public Resource Library

The following is a list of resources, available categorically, for your organization’s library in order to assist the families of those with developmental disabilities. The resoures include materials for parents, caregivers, and professionals in a variety of formats that include research reports, best practices, checklists and other tools, some of which are available in multiple languages. We would like to acknowledge the organizations that contributed to this collection of resources. The sources and, where possible, links to their respective Web sites, follow each resource listed.

Categorical Listing

Accessibility and Civil Rights

Accessibility Checklist Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This checklist will help to determine how accessible a building is and what improvements are needed and where.

Accessibility Checklist for Web Content (You will be taken to the World Wide Web Consortium Web Site)
Evaluation Questionnaire for Web Site Resources
This is a checklist of points for Web content accessibility for those with developmental disabilities. (supplied by implementation grantee Real Choice ACCESS)

Accommodation Ideas for Vision Impairments
This collection of resources from the Office of Disability Employment Policy Job Accommodation Network includes basic information on vision impairments and various accommodation strategies.

Americans with Disabilities Act (ADA) Anniversary Toolkit
Evaluation Questionnaire for Web Site Resources
This toolkit provides a variety of resources related to the 20th anniversary of the Americans with Disabilities Act (ADA). Materials include:

  • ADA - Findings, Purpose, and History
  • ADA from a Civil Rights Perspective
  • ADA Resources and Publications
  • ADA and Olmstead Resources
  • ADA Amendments Act of 2008 Summary and Resources
  • National ADA Initiatives
  • Statistics You Can Use
  • White House Agenda on Disabilities
  • Tips on Writing a News Release
  • Sample Proclamation: ADA Anniversary
(supplied by the ADA National Network)

Americans with Disabilities Act (ADA) Technical Assistance CD-ROM
Evaluation Questionnaire for Web Site Resources
This free CD-ROM contains a complete collection of ADA materials from the U.S. Department of Justice. It includes regulations, architectural design standards, and technical assistance publications. Documents on the CD are provided in a variety of formats to enable people with disabilities and others to gain easy access, translate materials to braille, or use screen readers. Many documents are provided in Adobe PDF format so that they will appear in print as they do on screen, allowing users to produce quality copies of those publications. (supplied by http://www.ada.gov)

Frequently Asked Questions About Reasonable Accommodation
Evaluation Questionnaire for Web Site Resources
This Web page provides frequently asked questions and answers around reasonable accommodation, which refers to modifications or adjustments to a job or work environment that will enable a qualified applicant or employee with a disability to participate in the application process or to perform essential job functions. Reasonable accommodation also includes adjustments to assure that a qualified individual with a disability has rights and privileges in employment equal to those of employees without disabilities. (supplied by DBTAC Northwest - ADA Information Center)

Minnesota Governor's Press Release Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
A poll sponsored by the Minnesota Governor's Council on Developmental Disabilities comparing current attitudes of Minnesotans with those reported in a similar survey 45 years ago shows substantial movement toward greater inclusion of people with developmental disabilities in society. See the results of the opinion poll. (supplied by our Minnesota implementation grantee)

Report From United Cerebral Palsy Portrays a Troubling Snapshot of the Status of Disability in America Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
United Cerebral Palsy has released a report, State of Disability in America, an evaluation of the disability experience in America. The 65-page document examines existing research on the overall state of affairs for individuals with disabilities in America in the areas of disability rights, healthcare, education, employment, housing, and organizing for change. While tremendous strides have been made, especially with the Americans with Disabilities Act, things are still not right, the report says. By and large, people with disabilities are more likely to live in poverty and be dependent on government services. They are less likely to have positive educational opportunities and outcomes, be employed, or own a home. (Supplied by United Cerebral Palsy)

Universal Design and Visitability Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
The book Universal Design and Visitability: From Accessibility to Zoning, edited by Jack L Nasar and Jennifer Evans-Cowley, is available to download for free. The book explores Universal design as a process that goes beyond minimum access codes and standards, to design environments that are comfortably usable by people from childhood into their oldest years. (supplied by our New Hampshire implementation grantee)

Web Accessibility Resource List Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document provides links to free online information related to creating accessible Web content for individuals with disabilities. The resource list includes links to accessibility guidelines and laws, as well as checklists and tools, such as color contrast checkers.

ADD Updates

ADD Update — May 2008
The ADD UPDATE is a periodic report on the latest information on ADD programs, legislative requirements, and other items of interest. This issue addresses programs that are working to solve problems associated with access to direct care. It also spotlights grantee programs that are building innovative solutions to the need for a variety of supports and services. Family Support 360 Programs are spotlighted on page 7 of this issue. (supplied by the Administration on Developmental Disabilities)

ADD Update — November 2008
The ADD UPDATE is a periodic report on the latest information on ADD programs, legislative requirements, and other items of interest. This issue addresses the importance of family support. It also focuses on autism spectrum disorder. (supplied by the Administration on Developmental Disabilities)

Assessments and Surveys

Assessment Quick Reference Guide
Evaluation Questionnaire for Web Site Resources
This guide provides an overview of the information collection process that can be used in decision-making, career-planning, and service plan development for a young person. (supplied by the National Collaborative on Workforce and Disability for Youth)

Attending Education and Training Opportunities: A Survey of North Dakota Families Raising Children With Special Needs Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document provides the results of focus group interviews conducted by the North Dakota Family to Family Network during the summer and early fall of 2002 across North Dakota to gather the viewpoints of parents raising children with special needs regarding their barriers to attending educational and/or training opportunities. (supplied by planning grantee, North Dakota Family Support One-Stop)

Education Assessment Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample one-page assessment documenting education needs and future plans. (supplied by Utah implementation grantee, Family Support 360: Disability Support Center for Families)

Employment Assessment Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample one-page assessment documenting previous employment and employment needs for those with developmental disabilities. (supplied by Utah implementation grantee, Family Support 360: Disability Support Center for Families)

Environmental Adaptations and Aids Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample one-page assessment documenting the types of equipment, aids, and/or modifications that those with developmental disabilities need. (supplied by Utah implementation grantee, Family Support 360: Disability Support Center for Families)

Family Assessment Form Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample family assessment form for one-stop centers, which includes information on personal information, family/household information, guardianship information, referral information, financial information, etc. (supplied by South Dakota implementation grantee, PLANS)

Family Needs Survey Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This is a two-page survey which determines family needs, including social support, finances, and child care among other needs. (supplied by implementation grantee, Family Support Network of North Carolina)

Financial Assessment Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample one-page assessment documenting benefits received by those with developmental disabilities as well as other financial needs and issues. (supplied by Utah implementation grantee, Family Support 360: Disability Support Center for Families)

Housing Assessment Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample one-page assessment documenting level of comfort with living arrangements and other living needs for those with developmental disabilities. (supplied by Utah implementation grantee, Family Support 360: Disability Support Center for Families)

Learning Opportunities for Your Child Through Alternate Assessments Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
The U.S. Department of Education has published a booklet explaining alternate assessments and how they relate to Individualized Education Programs (IEPs), the Individuals with Disabilities Education Act (IDEA 2004), and the No Child Left Behind Act (NCLB). Among other things, the document addresses why progress on IEPs cannot be used to meet the accountability provisions of NCLB. On request, this document can be made available in accessible formats, such as Braille, large print, and computer diskette.

Legal Needs Assessment Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample one-page assessment measuring the legal assistance needs of those with developmental disabilities and their families. (supplied by Utah implementation grantee, Family Support 360: Disability Support Center for Families)

Medical Needs Assessment Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample one-page assessment measuring the health of those with developmental disabilities, including determining current health insurance and medications. (supplied by Utah implementation grantee, Family Support 360: Disability Support Center for Families)

Recreation and Leisure Assessment Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample one-page assessment documenting the recreation and leisure activities of those with developmental disabilities. (supplied by Utah implementation grantee, Family Support 360: Disability Support Center for Families)

School Services Assessment Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample one-page assessment measuring effectiveness of school services. (supplied by Utah implementation grantee, Family Support 360: Disability Support Center for Families)

TRACE Snapshot - Pediatricians Appraisals of a Universal Checklist for Making Early Intervention Referrals Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
The Tracking, Referral and Assessment Center for Excellence (TRACE) has released a new snapshot entitled Pediatricians Appraisals of a Universal Checklist for Making Early Intervention Referrals by Carl J. Dunst, Carol M. Trivette, Anne Gramiak, and Glinda Hill. This snapshot presents the results from a survey of pediatricians’ assessments of the usability and applicability of a universal checklist for identifying infants and toddlers who may be eligible for early intervention.

Vermont Survey Questions Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
The Green Mountain Family Support 360 project utilized these questions in preparation for the ADD FS 360 application. They surveyed 38 families with this survey. (supplied by implementation grantee, Green Mountain Family Support 360 Implementation)

Best Practices and Lessons Learned

Family Support Everyday and in Times of Crisis Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This is the Beach Center on Disability’s summer 2006 newsletter, which focuses on family support, both in times of crisis and in everyday life. It offers a real story from Hurricane Katrina, an interview, and other useful information. (supplied by the Beach Center on Disability).

Best Practices in Supports and Services to Individuals With Developmental Disabilities Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This is a draft of North Carolina's Supporting Individuals and Families in Their Communities: Best Practice in Services and Supports to Individuals with Developmental Disabilities. This document reflects the continued movement toward reform and evidence-based practice.

Family Support 360 Benefits, Best Practices, and Lessons Learned Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
These lessons and successes were submitted by the 2004–2009 Family Support 360 grantees, the inaugural FS 360 grantees. In addition, some comments were gleaned from discussions that took place at the final Technical Assistance Institute in 2009.

Individual and Family Support Principles Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
Oklahoma's Individual and Family Support Principles are guiding truths that shape the way individuals, families and service providers interact; establish common ground upon which individuals, families, advocates and service providers operate; and form the basis for program policy and practice. (supplied by implementation grantee, Oklahoma's Family Support 360)

Innovative Models and Best Practices in Case Management and Support Coordination Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This Policy Research Brief describes models, innovations, and best practices in case management and support coordination for persons with disabilities. The approaches presented were identified during a study exploring the redesign of case management services for people with disabilities in Minnesota, and have broader applicability to other states. The study was conducted at the Research and Training Center on Community Living, University of Minnesota. (supplied by the Institute on Community Integration)

Lessons From Family-Strengthening Interventions: Learning From Evidence-Based Practice Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
The purpose of the brief is to help educators, service providers, and local evaluators in schools, intermediary and community-based organizations, and social service agencies become more effective by highlighting the best program and evaluation practices of family-strengthening intervention programs. At a time when evidence-based practice matters, this brief adds value to the field by reviewing programs proven by substantial research and evaluation to be effective. (supplied by the Harvard Family Research Project)

Partnering with Families to Design a Family-Centered Health Care System
Evaluation Questionnaire for Web Site Resources
This document provides background information to facilitate the development of an action plan to ensure that sustained, meaningful partnerships with patients and families are in place in hospitals and health systems; in community clinics and other ambulatory settings; in schools educating the next generation of health care professionals; in national associations; in Federal, State, and community agencies; in foundations and advocacy organizations; and among payers. (supplied by the Institute for Family-Centered Care)

Patient and Family Leaders in Paid Positions Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This document describes common challenges that occur when family leaders are in paid positions at healthcare organizations and offers effective solutions for each challenge. (supplied by the Institute for Family-Centered Care)

Picking Up the Pieces of Our Mistakes: Supporting People With Co-Occurring Conditions Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document reports on interviews conducted of five professional consultants who are actively working with state agencies, local providers, people with disabilities and their families, and direct care staff to respond to the needs of individuals with DD who have mental illness.

Presentations by Families: Staff Coordination and Preparation Roles Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This document recommends steps for navigators to take when selecting and preparing clients for presentations. (supplied by the Institute for Family-Centered Care)

Oklahoma Individual and Family Support Principles to Practice Indicators
Evaluation Questionnaire for Web Site Resources
The Oklahoma Individual and Family Support Principles to Practice Indicators were developed by families of individuals with disabilities, service providers, advocates, higher education faculty, and students. The Oklahoma Individual and Family Support Principles to Practice Indicators is a document that identifies ways of interacting, providing services and developing policy that reflect the principles of family support. (supplied by implementation grantee, Oklahoma's Family Support 360)

Pueblo Connections: UCEDD Promising Practice Brief
Evaluation Questionnaire for Web Site Resources
A promising UCEDD practice is identified by the Administration on Developmental Disabilities through the MTARS (Monitoring and Technical Assistance Review System) grantee monitoring process. Pueblo Connections, the New Mexico Family Support 360 grantee, was identified as promising for its innovation in fulfilling the community services core function of a UCEDD, as well as the quality of the program delivery which is marked by continual evaluation, responsiveness to participant input, and respectful methods in serving Pueblo communities. (supplied by the UCEDD Resource Center)

Sharing Your Story: Tips for Patients and Families Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This document lists tips for family members that are going to share their story with others so their stories will serve as powerful tools for bringing about constructive change in the service system. (supplied by the Institute for Family-Centered Care)

Supported Families
Evaluation Questionnaire for Web Site Resources
This booklet presents the Oklahoma Individual and Family Support Principles, illustrated by success stories. (supplied by Oklahoma's Family Support 360 Project.)

Child and Adolescent

27th Annual Report on the Implementation of the Individuals with Disabilities Education Act (IDEA), Parts B and C.
Evaluation Questionnaire for Web Site Resources
This is the Department of Education report on the progress made toward the provision of a free appropriate public education to all children with disabilities and the provision of early intervention services to infants and toddlers with disabilities. Volume 1 focuses on the children and students being served under IDEA and state-level data. Volume 2 contains extensive appendix tables of state-reported data required under Section 618 of IDEA. (supplied by the U.S. Department of Education)

Building Sustainable Partnerships with Schools: Three Key Strategies for Mentoring Programs
Evaluation Questionnaire for Web Site Resources
Community-based organizations are increasingly working together with teachers and administrators to bring mentoring programs to schools. To collaborate effectively and ensure maximum benefits for youth, strong partnerships must be forged. This page describes each strategy and includes concrete action steps to achieve effective collaboration. (supplied by The Corporation for National and Community Service)

Coping With Disaster: Suggestions for Helping Children With Cognitive Disabilities
Evaluation Questionnaire for Web Site Resources
This guide provides suggestions for helping children with cognitive impairments or delays to cope with this disaster. Like everyone, children with disabilities have fears and concerns unique to their experiences and skills. This guide includes general information about what to expect. It provides strategies for caregivers and teachers to use with children with disabilities that may affect learning, communication, and understanding. The guide also provides links to other online resources. (supplied by the Administration on Developmental Disabilities)

Disclosure Resources for Youth with Disabilities Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This series of factsheets from the U.S. Department of Labor, Office of Disability Employment Policy address disclosure and youth with disabilities, including workplace accommodations and when to share information about a disability with an employer. (supplied by the Office of Disability Employment Policy)

Early Intervention and Early Childhood Special Education Services Brochures
Evaluation Questionnaire for Web Site Resources
PACER Center has published a series of brochures and accompanying handouts to help school districts and other professionals tell families of young children about early intervention and early childhood special education services. The materials are in English, Hmong, Spanish, Somali, and Russian. English versions are directed to Native American and African American parents. (supplied by PACER Center)

Family Involvement in Middle and High School Students' Education
Evaluation Questionnaire for Web Site Resources
This is the newest brief from the Harvard Family Research Project. The third in a series, this brief synthesizes research studies that link family involvement in middle and high school to youth's academic and social outcomes. It profiles evaluated programs to show what works to promote family involvement and student achievement during this critical developmental period and highlights how you can use this research to promote effective policies and practices. (supplied by the Harvard Family Research Project)

Family Involvement Network of Educators (FINE) Monthly Announcements
Evaluation Questionnaire for Web Site Resources
FINE is a national network of over 8,000 people who are interested in promoting strong partnerships between children's educators, their families, and their communities. FINE's membership is composed of faculty in higher education, school professionals, directors and trainers of community-based and national organizations, parent leaders, and graduate students. The monthly announcements are sent via email and include what's new at FINE.

Guideposts for Success
Evaluation Questionnaire for Web Site Resources
Youth with disabilities, indeed all vulnerable youth, may need extra supports throughout their transition from youth to adulthood in order to make informed choices and become self-sufficient adults. Two sets of Guideposts have been created, centered on the two key customers of the workforce development system – youth and employers. The guideposts build upon evidence based research about what youth and employers need. (supplied by the National Collaborative on Workforce and Disability for Youth)

Kids' Quest on Disability and Health
Evaluation Questionnaire for Web Site Resources
This site is intended to get kids to think about people with disabilities and some of the issues related to daily activities, health, and accessibility. The Kids' Quest is designed for students in 4th, 5th, and 6th grades. Parents and teachers can modify the materials to meet the students' learning styles and levels. Quests can be used in lessons about health, social studies, and tolerance in society. The Quests include topics related to limitations people with disabilities face in participating in various activities. These limitations are grouped under motor, communication, personal-care, and learning. (supplied by the Centers for Disease Control and Prevention)

National Early Childhood Technical Assistance Center (NECTAC) eNotes
Evaluation Questionnaire for Web Site Resources
This electronic newsletter shares news items related to early intervention and early childhood special education from a variety of reliable sources. (supplied by the National Early Childhood Technical Assistance Center)

QuickNotes: Inclusion Resources for Early Childhood Professionals
Evaluation Questionnaire for Web Site Resources
This notebook contains information sheets covering a broad range of topics related to high quality care of young children in a variety of settings. The content is organized in 10 modules and applies to a wide audience of early care and education professionals including teachers, teaching assistants, administrators, specialists such as therapists and early interventionists, and families. The modules present current information and strategies based on the best available research and professional wisdom from the early childhood field. This resource can be purchased online. (supplied by the Partnership for Inclusion)

The Road to Self-Sufficiency: A Guide to Entrepreneurship for Youth with Disabilities Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This guide was developed to serve as a resource for organizations working with youth on career exploration and employment options, as well as policymakers who support youth programs through policy and practice. The guide shows how entrepreneurship education can be implemented in programs and offers suggestions on how to introduce self-employment as an option for all youth, including youth with disabilities. (supplied by the National Collaborative on Workforce and Disability for Youth)

SCHIP Reauthorization: Key Questions in the Debate
A Description of New Administrative Guidance and the House and Senate Proposals
Evaluation Questionnaire for Web Site Resources
In August 2007, the U.S. Senate and the House of Representatives approved legislation to reauthorize the State Children's Health Insurance Program (SCHIP), which covers six million low-income children. With the release of the Census health coverage numbers, this updated brief, developed by the Kaiser Foundation, answers key questions that explain the ongoing policy debate about this public health coverage program, which builds on Medicaid's coverage of 28 million poor and low-income children. It includes a side-by-side of the House and Senate legislative provisions and information on the new CMS guidance.

State Early Childhood Policy Profiles
Evaluation Questionnaire for Web Site Resources
State policies that promote health, education, and strong families can help the early development and school readiness of America’s youngest citizens. These profiles highlight states’ policy choices alongside other contextual data related to the well-being of young children. (supplied by the National Center for Children in Poverty)

Screening for Social Emotional Concerns: Considerations in the Selection of Instruments
Evaluation Questionnaire for Web Site Resources
The purpose of this document is to provide a brief overview of the use of screening. It is intended to help education administrators and teachers choose appropriate instruments for implementing a screening program. (supplied by the Technical Assistance Center on Social Emotional Intervention)

Students with Traumatic Brain Injury: Identification, Assessment, and Classroom Accommodations
This 17-page brochure is intended to provide a general overview of how schools can best meet the needs of students with traumatic brain injuries (TBI). It is not an in-depth training manual, but instead highlights what educators and advocates for children with TBI need to know about maximizing the educational experiences of students who have suffered an injury to the brain. These children need to be identified in schools, assessed appropriately, and taught in ways that fully address their cognitive and behavioral challenges, while capitalizing on their strengths. (supplied by Mount Sinai's Traumatic Brain Injury (TBI) Central)

Transition Issues and Barriers for Children with Significant Disabilities and from Culturally and Linguistically Diverse Backgrounds
Evaluation Questionnaire for Web Site Resources
This report from the National Early Childhood Transition Center (NECTC) provides findings from a national study that aimed to identify issues and barriers encountered during transitions for young children with disabilities and their families. Transitions for two specific groups were targeted; (a) children with significant disabilities and their families, and (b) children with disabilities from culturally and linguistically diverse backgrounds and their families. (supplied by NECTC)

Youth with Disabilities in the Foster Care System: Barriers to Success and Proposed Policy Solutions
Evaluation Questionnaire for Web Site Resources
Youth development researchers have determined that some specific youth populations are more vulnerable than others. This report by the National Council on Disability (NCD) examines one exceptionally challenged group in particular: older youth (specifically, preteen through young adult) with disabilities who are in the foster care system. (supplied by NCD)

ZAC Browser
Evaluation Questionnaire for Web Site Resources
ZAC is the first web browser developed specifically for children with autism, and autism spectrum disorders such as Asperger's Syndrome, pervasive developmental disorders (PDD), and PDD-NOS. ZAC Browser is a place that children can safely, easily and independently surf the web and successfully interact with many web applications. ZAC Browser also provides a parent/caregiver forum, useful links, and a newsletter, available in English, Spanish, and French.

Collaborations

Aging and Disability Resource Center (ADRC) Grantee Information
ADRC Grantee Map
Evaluation Questionnaire for Web Site Resources
Local ADRC Locator
Evaluation Questionnaire for Web Site Resources
The Administration on Aging and the Centers for Medicare and Medicaid Services launched the ADRC grant initiative in 2003. The purpose is to promote the integration of long-term care information and referral services, benefits and options counseling services, and access to publicly and privately financed services and benefits for those in need of long-term supports and their families. ADRCs serve older adults and individuals with disabilities of all ages. ADRC grants have been awarded to 43 states and territories, and are a collaborative resource for Family Support 360 grantees. (supplied by the ADRC Technical Assistance Exchange)

Community Economic Development Program Grantee List
Evaluation Questionnaire for Web Site Resources
The purpose of the Community Economic Development discretionary grant program is to promote and support projects that address economic self-sufficiency for low-income persons and distressed communities by awarding funds to community development corporations to create employment and business development opportunities. This page provides a list of all current grantees, their contact information, and project descriptions. (supplied by the Office of Community Services)

Facilitating a Productive Advisory Committee
Evaluation Questionnaire for Web Site Resources
This issue brief, developed by the Lewin Group for the Aging and Disability Resource Centers (ADRC), explores developing an effective advisory committee, key considerations when forming and facilitating a committee, and tips to promote ongoing involvement in a committee. (supplied by the ADRC Technical Assistance Exchange)

Partnership Development: Aging and Developmental Disability Coalition
(PDF Format) Adobe Acrobat Document and Microsoft Word Format Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
Diverse partnerships ensure that the needs and interests of all aging and developmental disability client groups are represented. The Georgia Aging and Disability Resource Center (ADRC) developed this resource to help organizations build partnerships between Aging and Developmental Disability groups. Partnerships often emerge naturally between individuals and organizations who share a common vision or concern. This resource provides a series of questions and points to consider when partnering organizations and networks.

Single Entry Point Systems: State Survey Results
Evaluation Questionnaire for Web Site Resources
This document provides results from a Rutgers Center for State Health Policy/NASHP Community Living Exchange Collaborative survey of the 50 States and the District of Columbia to identify states that operate single entry point systems (SEP) and to describe the characteristics of SEPs.

Substance Abuse Treatment Block Grant Single State Authorities
Evaluation Questionnaire for Web Site Resources
This document is a list of grantees from the Substance Abuse Treatment Block Grant Single State Authorities (SSAs). They are available if the FS360 grantees would like to partner with them.

Strategies for Building Collaboration Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This issue brief, developed by the Lewin Group for the Aging and Disability Resource Centers (ADRC), provides basic ideas and strategies for identifying key partners, establishing communication with partners in the context of an internal public relations message, and offers resources for securing and maintaining collaborative working relationships. (supplied by the Aging and Disability Resource Centers Technical Assistance Exchange)

Community Building and Organizing

Andale and Resource Exchange Documents
Evaluation Questionnaire for Web Site Resources
These documents are from implementation grantee John Agosta to assist grantees in their efforts to create "time banks" or bartering and exchange networks. Grantees can use these documents if they plan to start a time bank program. (supplied by implementation grantee, Together We Can: A One-Stop Center for Families)

Discovering Community Power: A Guide to Mobilizing Local Assets and Your Organization's Capacity Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
Funded by the W.K. Kellogg Foundation, the ABCD Institute developed this guide to help organizations strengthen their own organizations by enhancing connections with community assets, strengthen the community by investing in community assets, and strengthen current and future community based projects, activities, and proposals. (supplied by the Asset-Based Community Development Institute)

Lynn Time Bank Newsletters
Evaluation Questionnaire for Web Site Resources
The Lynn Time Bank in Massachusetts aims to build community through neighbors helping neighbors, exchanging skills and talents. These newsletters contain information about the Time Bank, its work, and future planned activities. (supplied by the Oregon Family Support 360)

Consumer/Advocacy Resources

Ability Online
Evaluation Questionnaire for Web Site Resources
Ability Online has a message board, which is broken up into 'conferences' (teens, hospitalizations, tech-talk, kids chat, transportation services, etc...). To be able to post to Ability Online's message board, you have to sign up with the service, for free, and they mail you a keyword to enter in. You can, however, scroll through the available conferences and read messages without signing up.

In the Driver's Seat: A Guide to Self-Directed Mental Health Care Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
Combining prior innovative features with some new approaches, self-directed care is recognized as an important milestone in the growth and development of consumer self-determination. Part I of this guide is a brief description of self-directed care. Part II offers advocacy strategies and tactics, while Part III is a more in-depth look at how self-directed care initiatives work and how they are funded. The appendices include fact sheets with information that would be useful to state policymakers and consumer advocates. The fact sheets may be copied and distributed. The appendices also provide a list of further reading and useful information on self-directed care. (supplied by the Bazelon Center for Mental Health Law and the UPENN Collaborative on Consumer Integration)

The Future of Disability in America
Evaluation Questionnaire for Web Site Resources
This publication, written by the Committee on Disability in America and edited by Marilyn J. Field and Alan Jette, is now available. The Future of Disability in America examines both progress and concerns about continuing barriers that limit the independence, productivity, and participation in community life of people with disabilities. This book offers a comprehensive look at a wide range of issues, including the prevalence of disability across the lifespan; disability trends the role of assistive technology; barriers posed by health care and other facilities with inaccessible buildings, equipment, and information formats; the needs of young people moving from pediatric to adult health care and of adults experiencing premature aging and secondary health problems; selected issues in health care financing (e.g., risk adjusting payments to health plans, coverage of assistive technology); and the organizing and financing of disability-related research. The Future of Disability in America is an assessment of both principles and scientific evidence for disability policies and services. This book's recommendations propose steps to eliminate barriers and strengthen the evidence base for future public and private actions to reduce the impact of disability on individuals, families, and society.

Policy Guide
This Policy Guide was developed to provide an orientation to public policy work with and on behalf of individuals with intellectual and developmental disabilities and their families. The Guide provides information and articles about making federal policy, including the federal budget process. It briefly describes key Congressional committees, Executive branch agencies, federal legislation and judicial decisions that are most significant for people with disabilities. It also lists a number of stakeholder and constituent groups that work with and on behalf of individuals with intellectual disabilities and their families. (supplied by the Joseph P. Kennedy, Jr. Foundation)

Cultural Competency

Assessment of Organizational Cultural Competence Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This instrument’s purpose is to help organizations assess their progress toward cultural competence, at the organizational and individual level. (supplied by the Association of University Centers on Disabilities)

Cultural and Linguistic Competence in Family Supports
Evaluation Questionnaire for Web Site Resources
Cultural and Linguistic Competence in Family Supports is a policy brief from the National Center for Cultural Competence, Georgetown University Center for Child and Human Development (GUCCHD). The brief discusses cultural factors that may impact supports and services for families of children with special health care needs. It is meant to be used by organizations interested in developing policies that promote and sustain cultural and linguistic competence in the provision of family support services.

Cultural Competence in Working With Children and Families
Evaluation Questionnaire for Web Site Resources
This site provides resources to help professionals, agencies, and systems better understand and enhance their cultural competence. More specifically, it offers resources related to working with children, youth, and families of various cultural and ethnic groups, including State and local examples. (supplied by the Child Welfare Information Gateway)

Getting the Word Out: Effective Outreach to Cultural Communities Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
"Getting the Word Out is a guide to effective outreach for health organizations. In particular, this guide is intended for patient support organizations that would like to make their information, referral, support and advocacy services more accessible to people from a variety of cultural communities." [posted on CLAStalk-list] (supplied by the Medtronic Foundation)

Individual Assessment of Cultural Competence Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This assessment was developed to assist you in reflecting upon and examining your organization's journey toward cultural competence. (developed by AUCD Multicultural Council)

Instructions for Assessment of Organizational Cultural Competence Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
The purpose of this assessment instrument is to assist organizations to assess their progress towards cultural competence, both at the organizational and individual level. (developed by AUCD Multicultural Council)

National Standards for Culturally and Linguistically Appropriate Services in Health Care: Executive Summary Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This report recommends national standards for culturally and linguistically appropriate services (CLAS) in health care. Based on an analytical review of key laws, regulations, contracts, and standards currently in use by Federal and State agencies and other national organizations, these standards were developed and refined with significant input from a nationwide public comment process and the guidance of two national project advisory committees. (supplied by the Office of Minority Health)

National Standards on Culturally and Linguistically Appropriate Services
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The CLAS standards are primarily directed at health care organizations; however, individual providers are also encouraged to use the standards to make their practices more culturally and linguistically accessible. The principles and activities of culturally and linguistically appropriate services should be integrated throughout an organization and undertaken in partnership with the communities being served.

New American and Refugee Families Microsoft Word Document
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New American or refugee families are one of the most under-served populations in North Dakota, according to stakeholders and parents serving on the North Dakota Family Support Advisory Committee. This technical assistance manual was designed to help family support agencies learn about diverse populations who have moved to the area and consider new ways to support those families. (supplied by planning grantee, North Dakota Family Support One-Stop)

Research and Dissemination in Indian Country; Indianonish, Email, and Other Surprises Webcast
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This is a three-part presentation that focuses on false assumptions and cultural differences that prevent effective research and dissemination on Indian reservations. The second part of the presentation discusses modifications to typical research designs to effectively work on Indian reservations. The third part of the presentation summarizes the research by Spirit Lake Consulting, a firm that has conducted applied research on reservations in the Great Plains for 20 years, on the means by which individuals with disabilities and their families obtain information. (supplied by National Center for the Dissemination of Disability Research)

Resource Guide for Serving Refugees with Disabilities
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The Resource Guide for Serving Refugees with Disabilities is written as a how-to for caseworkers and advocates who serve refugees with disabilities. It was developed in an effort to improve access to services for newly arrived refugees with disabilities. With an increasing number of refugees with disabilities resettled in the U.S., there is a greater need for effective and coordinated care. Funding for this project was provided through the U.S. Department of Health and Human Services, Office of Refugee Resettlement.

Serving Diverse Families: Strategies for Early Childhood Service Providers Webinar
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This archived webinar from May 2008 is designed for early childhood intervention and early childhood special education professionals who want to increase their effectiveness in working with young children with disabilities from diverse cultures. The Webinar will include information on how to avoid offending parents from various cultures, how to help families feel comfortable expressing opinions and proposing solutions, and how best to support a family when you do not agree with their decisions. (supplied by PACER Center)

Supporting American Indian Families of Children With Special Needs in North Dakota Microsoft Word Document
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This resource was developed for family support providers with several purposes in mind. The intent of this manual is to provide a positive and realistic picture of both the strengths and the challenges faced by American Indian families of children with disabilities living in reservation communities; to provide information about potential partners who live or work in reservation communities and are working to develop systems and resources needed to provide support to American Indian families of children with special needs; and to present resources and strategies that members of the reservation community have learned will strengthen relationships and assist them to build new systems of support. (supplied by planning grantee, North Dakota Family Support One-Stop)

Disability Definitions and General Information

Definition of Developmental Disabilities
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This document provides a definition of "Developmental Disabilities" according to the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act).

Developmental Disability Act of 2000
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This link will take you to the text of the Developmental Disabilities Assistance and Bill of Rights Act of 2000, known as the DD Act, on the Administration on Developmental Disabilities' (ADD) Web Site. ADD is the U.S. Government organization responsible for implementation of the DD Act.

Disability Law Handbook
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Disability law is an area of law that overlaps with many other areas of law, including employment, administrative, elder, consumer, construction, insurance, school, health, social security, and civil rights. This handbook is meant to provide basic information about disability rights, as well as resources for finding out more information. (supplied by the DBTAC Southwest ADA Center)

Disability History Timeline
Adobe Acrobat Format (English) Adobe Acrobat Document | Microsoft Word Format (English) Microsoft Word Document
Adobe Acrobat Format (Spanish) Adobe Acrobat Document | Microsoft Word Format (Spanish) Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This resource and discussion guide is designed to assist youth with and without disabilities to learn about the history of people with disabilities. Although designed primarily for youth and emerging leaders with disabilities, the guide can be used in multiple ways to educate a broader audience. Starting shortly before the United States was founded, the guide features examples of the diversity, creativity, and leadership that have shaped the disability community and American culture. (supplied by the National Consortium on Leadership and Disability for Youth)

Supplemental Guide for Developmental Disabilities Adobe Acrobat Document
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This document, developed by the Aging and Disability Resource Center (ADRC) Georgia Grantee, provides a definition of "developmental disability", prevention and screening information, and descriptions of specific conditions. (supplied by the Aging and Disability Resource Center)

Disability-Specific

"No Myths" Public Service Announcement on Autism
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The "No Myths" public service announcement (PSA) offers a positive and optimistic view about life with autism. It was written and performed by individuals who are on the autism spectrum. The purpose of the PSA is to inform society that, with the right supports, people with autism can do anything anybody else can do, even if it is not in the same way. The PSA was sponsored by the Dan Marino Foundation.

Emergency Preparedness

Accommodating Individuals With Disabilities in the Provision of Disaster Mass Care, Housing, and Human Services
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On August 21, 2007, the Department of Homeland Security's Federal Emergency Management Agency (FEMA) released a new reference guide that outlines existing legal requirements and standards relating to access for people with disabilities. A Reference Guide for Accommodating Individuals with Disabilities in the Provision of Disaster Mass Care, Housing and Human Services (the "Guide") is the first of a series of disability-related guidelines to be produced by FEMA for disaster preparedness and response planners and service providers. The Guide summarizes equal access requirements for people with disabilities within disaster mass care, housing, and human services functions. The Guide explains how applicable federal laws relate to government entities, the private sector, and religious organizations.

Disaster Preparedness for People With Disabilities Microsoft Word Document
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This document has been designed to help people who have physical, visual, auditory, or cognitive disabilities to prepare for natural disasters and their consequences. (supplied by the American Red Cross Disaster Services)

Disaster Solutions Microsoft Word Document
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This document is compiled from various documents, including reports from DD grantees. It provides ideas for tracking and locating individuals with DD in a disaster situation, advocacy education, screening, linking to services, appropriate shelters and housing, transportation, and emergency preparedness.

Effective Emergency Management: Making Improvements for Communities and People with Disabilities
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In this report, the National Council on Disability (NCD) offers information and advice to assist all levels of government in its work to establish evidence-based policies, programs, and practices across the life cycle of disasters. This report provides examples of effective community efforts with respect to people with disabilities, and evaluates many emergency preparedness, disaster relief, and homeland security program efforts deployed by both public and private sectors. (supplied by NCD)

Emergency Management Research and People with Disabilities: A Resource Guide Adobe Acrobat Document
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This guide is the culmination of cooperative efforts by the National Institute on Disability and Rehabilitation Research, the Department of Education, the Research Subcommittee of the Interagency Coordinating Council on Emergency Preparedness and Individuals with Disabilities, and the New Freedom Initiative Subcommittee of the Interagency Committee on Disability Research. It provides a listing and description of research projects funded by the federal government and nonfederal entities, research recommendations that have come out of conferences on emergency management and disability, and a bibliography of relevant research publications. (supplied by the U.S. Department of Education)

Emergency Preparedness Belongs to Everyone
On October 14, 2008, Dr. Patricia Morrissey, Commissioner of the Administration on Developmental Disabilities (ADD), presented on emergency and disaster preparedness. The focus of the presentation was on vulnerable populations, including individuals with disabilities and older individuals.
PowerPoint Presentation Adobe Acrobat Document
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Recommended Emergency Preparedness Resources

Emergency Response Preparedness Self-Assessment Instrument
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This instrument was developed by the National Association of State Directors in collaboration with the Research and Training Center, Institute on Community Integration at the University of Minnesota. Initiated following the Gulf Coast Hurricane disasters in 2005, the tool is designed to assist state developmental disabilities officials evaluate the extent to which their existing preparedness plans address the unique characteristics and needs of people with intellectual and developmental disabilities during periods of emergency or disaster. (supplied by the National Association of State Directors of Developmental Disabilities Services)

FEMA: A Guide to the Disaster Declaration Process and Federal Disaster Assistance
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This guide explains the disaster declaration process and provides an overview of the assistance available. (supplied by the Federal Emergency Management Agency)

Guide to Emergency Preparedness
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This online guide contains information related to emergencies, including: Planning for Natural Disasters; Civil Defense Agencies; Police and Fire Services; Emergency Medical Services; Emergency Manager, Planners and Responders; Home Preparedness; Work and Office Preparedness; and Emergency Laws and Disability. (supplied by implementation grantee Real Choices Hawaii)

Instructional Video and Preparedness Tools for Persons with Disabilities
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People with disabilities and special needs may need to make specific preparations for emergency situations. This new Ready America video provides helpful information on how to do so in three easy steps: get an Emergency Supply Kit; make a family emergency plan; be informed about different types of emergencies. A new brochure for people with disabilities and special needs is also available. (provided by the U.S. Department of Homeland Security.)

Lessons Learned: People with Disabilities and Emergency Management Microsoft Word Document
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This monograph represents the proceedings of the National Council on Disability (NCD) January 2008 quarterly meeting. It is part of a one-year research project on disability issues and disasters that NCD is conducting. The information in this monograph is being released at this time for use by people with disabilities, first responders, policy makers and communities who are actively involved in using lessons learned to improve their emergency preparedness efforts. (supplied by NCD)

NCD Public Consultation Microsoft Word Document
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The National Council on Disability (NCD) is using a public consultation process to identify local best practices in the areas of homeland security, emergency preparedness, and disaster relief and recovery. The expectation is that local communities can offer workable solutions and advice to help the Federal Government (and its state and private partners) establish policies, disseminate information, and support best practices for those most immediately affected by natural and man-made disasters. This document outlines the background, key issues, relevant research and best-practices themes around the issues of homeland security, emergency preparedness, and disaster relief and recovery. If you have been affected by a disaster or emergency, and are interested in participating in this public consultation, you may want to respond or react to any of the “best practice themes” contained in this document. Contact information is provided. (supplied by the National Council on Disabilities)

Prepare Yourself: Disaster Readiness Tips for People with Developmental or Cognitive Disabilities Adobe Acrobat Document
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This brochure from the National Organization on Disability is designed to help people with developmental and cognitive disabilities begin to plan for emergencies. It includes information on preparedness, response, and sheltering. (supplied by the National Organization on Disability)

Preparing People with Disabilities for Evacuation, Shelter, and Recovery During National Emergencies
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Knowing how to evacuate during a disaster is critical for individuals with disabilities. This effective practice from the National Service Inclusion Project will assist organizations and individuals with disabilities to develop and implement accessible emergency preparedness plans. (supplied by the Corporation for National & Community Service Resource Center)

Ready, Willing, and Able Online Course
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This disaster preparedness and response course on meeting the needs of persons with disabilities is designed for the public health, hospital, preparedness, emergency response, and disaster relief workforce. Specific training covers disability etiquette, terminology, and communications and assistance techniques during disasters for assisting people with disabilities. Course participants will become familiar with various disaster assistance needs of persons with sight, mobility, hearing, and cognitive disabilities. (supplied by TRAIN)

Working Together When the Worst Happens: Nonprofit Emergency Preparedness in the National Capital Region Adobe Acrobat Document
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This document was produced for nonprofits in the Washington, D.C. area; however, lessons learned can be applied to nonprofits throughout the United States. It provides information on coordinating case management amongst nonprofits; coordinating volunteers; managing financial donations; and managing in-kind donations. (supplied by The Nonprofit Roundtable of Greater Washington

Education

Frequently Asked Questions About Section 504 and the Education of Children with Disabilities
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This is a revised version of a document originally developed by the Office for Civil Rights to clarify the requirements of Section 504 of the Rehabilitation Act of 1973, as amended in the area of public elementary and secondary education. Its primary purpose is to incorporate information about the Americans with Disabilities Act Amendments Act of 2008 (Amendments Act), which includes a conforming amendment to the Rehabilitation Act that broadens the interpretation of disability. OCR is currently evaluating the impact of the Amendments Act on OCR’s enforcement responsibilities under Section 504 and Title II of the ADA, including whether any changes in regulations, guidance, or other publications are appropriate.

Employment and Labor Information

Creating a Roadmap out of Poverty for Americans with Disabilities
A Report on the Relationship of the Employment and Training Administration's Workforce Development System and Local Asset-Building Coalitions
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This white paper is an example of the Office on Disability Employment Policy's research into best practices in asset development. It focuses on three cities: Detroit, Jacksonville, and Milwaukee, and the tie-in between the workforce development system and advancing self-sufficiency for individuals with disabilities. (supplied by ODEP)

DisabilityWORK.com
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DisabilityWORK.com job placement service helps take the frustration out of the job search process by pairing individuals with disabilities with employers actively seeking qualified employees with disabilities. Services include consultation, action plan agreement, background checks, pre-employment interviews, training modules and interviewing. Employers can post jobs and search resumes. (supplied by DisabilityWORK.com)

Empowerment for Americans with Disabilities: Breaking Barriers to Careers and Full Employment
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The National Council on Disability has put out a report that reviews the issues integral to the employment of people with disabilities. It has two broad aims: 1) to summarize the existing knowledge regarding the employment of people with disabilities in a series of short issue briefs and 2) to present new information on the perspectives of employers, people with disabilities, and disability specialists on the key barriers and facilitators of employment.

Essential Skills to Getting a Job Adobe Acrobat Document
What Young People with Disabilities Need to Know
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This four-page brochure provides an overview of basic skills, issues and information that can help young people with disabilities to succeed in the job search process. Topics include, but are not limited to, work ethic, communication, and problem solving. (supplied by the Office of Disability Employment Policy)

Exploring the Bottom Line: A Study of the Costs and Benefits of Workers with Disabilities Microsoft Word Document
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This study conducted by DePaul University and the Illinois Department of Commerce and Economic Opportunity focused on people with disabilities in employment, however, these findings can relate to the performance and supervision of service members and volunteers in national service. Research from this study found that people with disabilities performed as well in jobs as those without disabilities. (supplied by www.disabilityworks.org)

Improving Employment Opportunities for Persons with Disabilities: Resources of the Week - February 8, 2008Microsoft Word Document
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This weekly resource toolkit provides websites, resources, publications, news and information in order to aid work on systems change activities to help improve employment opportunities for persons with disabilities. (supplied by The Law, Health Policy & Disability Center at the University of Iowa College of Law and The Burton Blatt Institute at Syracuse University)

Occupational Projections for Direct-Care Workers 2006–2016 Adobe Acrobat Document
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This fact sheet summarizes and analyzes direct-care workforce statistics from the U.S. Dept. of Labor's national occupational projections for 2006-16. The analysis shows that demand for workers will sharply exceed supply. Demand will especially surpass the number of women aged 25-54 entering the workforce, which is the primary demographic group from which direct-care workers are drawn. The analysis also shows that twice as many people will be working in home- and community-based settings than in facilities. (supplied by PHI National)

PITCH: Proving Individuals with Talent Can Help
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The Department of Labor's Office of Disability Employment Policy's (ODEP) recently announced its new PITCH Campaign. The campaign's spokesman, Jim Abbott, is a former Major League Baseball pitcher. Along with ODEP, Jim is helping to spread the word about the value that people with disabilities can bring to the workplace. This site provides sections for individuals with disabilities, parents of individuals with disabilities, and employers. (supplied by U.S. Department of Labor, Office of Disability Employment Policy)

Promising and Featured Practices For Vocational Rehabilitation Agencies
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The Rehabilitation Services Administration (RSA), as part its monitoring of State employment and independent living programs funded under the Rehabilitation Act, together with state vocational rehabilitation agencies and their stakeholders, have identified promising practices in a number of topic areas including 1) the transition of youth with disabilities from school to employment; 2) independent living programs; and 3) Vocational Rehabilitation Programs. Brief descriptions of these practices are available at the above link.

Real Economic Impact (REI) Tour: Annual Report Adobe Acrobat Document
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The REI Tour is a public-private partnership of federal, state, local, and national organizations designed to improve the economic well-being of working Americans with disabilities through asset building strategies. In 2008, the REI Tour will expand to 62 cities nationwide and will be expected to benefit over 50,000 low income wage earners with disabilities, with financial education classes, and new savings and asset building opportunities. (supplied by REI Tour)

Social Security Administration (SSA): Linking Candidates with Disabilities to SSA Jobs
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The Social Security Administration has hired a significant number of employees, including many with disabilities, throughout the country during this fiscal year. It expects to continue hiring during the next fiscal year which begins on October 1, 2009. Additionally, plans have been made to open new facilities in the next few years. This Web page provides detailed information about the Administration's recruitment and job opportunities. (supplied by Ticket to Work)

Strategies for Promoting and Improving the Direct Service Workforce: Applications to Home and Community-Based Services
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This is a compendium of three discussion papers on the topics of direct service workers in long-term care and strategies for improving the quality of their jobs and services. The authors, each with a background that includes consultation and technical assistance on the topics, share the premises that a) these workers are fundamental to the future and quality of long-term care; and b) that current and projected workforce shortages need to be addressed. (supplied by Rutgers Center for State Health Policy)

Succeeding in College and at Work: Students with Disabilities Tell Their Stories
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In the videos, students with disabilities share strategies to successfully stay in school, graduate, and get jobs. Students reveal their struggles with self-reporting their disabilities and negotiating accommodations in school and at work. DVDs are available upon request. (supplied by the New England ADA Center)

Survey of Employer Perspectives on the Employment of People with Disabilities Microsoft Word Document
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The U.S. Department of Labor, Office of Disability Employment Policy (ODEP), conducted a 2008 nationally representative survey of employer perspectives on the employment of people with disabilities. The objective of this survey was to inform the development and promotion of policy and practice by comparing employer perspectives across various industries and within companies of varying sizes. ODEP will use the data from this survey to formulate targeted strategies and policies for increasing employment opportunities for people with disabilities. This report provides the methods and results of the survey. (supplied by ODEP)

Universal Design for the Workforce Development System Toolkit
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This is a collection of tools, online training modules, and best practice findings from the field, all of which are designed to promote a workforce development system that is both responsive to local needs and realities, and able to meet the needs of its diverse businesses and career-seeker customers. Taken together, these tools form a comprehensive system evaluation and change curriculum, which users can customize to best meet specific state and local needs. (supplied by the National Center on Workforce and Disability)

US and UK Routes to Employment: Strategies to Improve Integrated Service Delivery to People with Disabilities
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This report identifies strategies to strengthen integrated service delivery systems and to assist individuals with disabilities in gaining and maintaining productive employment. Implementing these strategies can benefit individuals with disabilities, who have the opportunity to realize their potential more fully, and society at large, which gains the productive skill of talented individuals. (supplied by the Institute for Community Inclusion)

Worksupport.com E-Newsletter
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Information, resources and research about work and disability issues. December 2007 Issue.

Evaluations and Outcomes

Analyzing Quantitative Data From Program Beneficiaries
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To satisfy performance measurement requirements, programs typically use quantitative data to gauge the degree to which output, intermediate outcome, and end outcome targets have been met. When logs, surveys, tests, or structured interviews are used to collect responses and other information from program beneficiaries to assess program outcomes, and responses are gathered using “check box” options, these responses should be changed to numerical values. This effective practice submitted by Project STAR in June 2006, helps programs learn to convert and examine this important information. (supplied by the Corporation for National & Community Service)

Conducting Internal Outcome Evaluation for Program Improvement
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Conducting internal outcome evaluation can yield important data for programs. This effective practice offers suggestions on how to use internal evaluation results to review program services. (supplied by the Corporation for National & Community Service)

Creating a Meaningful Evaluation Report
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The Corporation is placing increased emphasis on the importance of performance measures as both a program management tool and a means by which to communicate program impact. Outcome measurement is also becoming increasingly common among nonprofit organizations in general. This effective practice, excerpted from the User's Guide to Evaluation for National Service Programs developed by Project STAR, addresses how best to write a report after data has been collected. A link to the document is provided. (supplied by the Corporation for National & Community Service)

Effective Practices in Program Evaluation
Evaluation Questionnaire for Web Site Resources
This collection of effective practices provides a range of topical guidance from choosing and working with an external program evaluator to creating a meaningful evaluation report. (supplied by the Corporation for National & Community Service Resource Center)

Harvard Family Research Project Evaluation
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The Harvard Family Research Project (HFRP) develops and evaluates strategies to promote the well being of children, youth, families, and their communities. It works primarily within three areas that support children’s learning and development—early childhood education, out-of-school time programming, and family and community support in education. This website page on evaluation provides a variety of resources, including publications and a link to the Evaluation Exchange, HFRP's periodical about emerging strategies in evaluation.

The Indicator: NCI’s Bimonthly Newsletter – October 2007
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The latest newsletter of the National Core Indicators (NCI) program, this publication is designed to keep you abreast of developments and best practices in performance and outcome measurement as exemplified in initiatives among NCI participants. Volume 2, Issue 2 explores the birth of this national collaboration at the 10th Anniversary. The newsletter highlights the pioneer states and founding members and explains how NCI data is utilized and the future ideas as NCI enters their second decade. (supplied by The Community Living Exchange Collaborative)

Logic Model Development Guide
Evaluation Questionnaire for Web Site Resources
This guide was developed by the W.K. Kellogg Foundation to support organizations in their efforts to evaluate their programs. The program logic model offers a picture of how your organization does its work - the theory and assumptions underlying the program. A program logic model links outcomes with program activities/processes and the theoretical assumptions/principles of the program.

Outcome Measurement in Nonprofit Organizations: Current Practices and Recommendations Adobe Acrobat Document
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This report provides a view of the state of outcome measurement as implemented in a number of private nonprofit service organizations engaged in outcome measurement.(supplied by Independent Sector)

Outcome Measurement: Showing Results in the Nonprofit Sector
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This document describes current activities in five important areas, offers 30 useful lessons learned, and discusses seven key challenges still to be overcome in outcome measurement.(supplied by the United Way)

The Program Manager's Guide to Evaluation
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Good program evaluations assess program performance, measure impacts on families and communities, and document program successes. With this information, programs are able to direct limited resources to where they are most needed and most effective in their communities. To help programs fulfill these goals, the Administration on Children, Youth, and Families has developed this guide, which explains program evaluation-what it is, how to understand it, and how to do it. (For those working with Head Start programs, this guide can be downloaded free of charge from Head Start)

Training Data Collectors
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Performance measurement data is used in helping to assess program performance. Systematic data collection involves administering instruments and gathering and organizing responses. This effective practice shares training tips for data collectors. (supplied by the Corporation for National & Community Service)

Using Qualitative Data to Add Value to Performance Measurement
Evaluation Questionnaire for Web Site Resources
Qualitative data is descriptive information from clients served that is documented through open-ended questions, interviews, or structured focus groups. Details provided in these open-ended responses create a fuller picture of a program, and can add vitality to program reports. When presented together, qualitative data and quantitative data can make compelling statements of program results. This effective practice, submitted by Project STAR in August 2006, describes strategies for gathering and utilizing this type of information. (supplied by the Corporation for National & Community Service)

Family Support

AFI Family Support 360 IDA Initiative Microsoft Word Document
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This document describes the goals, tasks and services for grantees, and the background of the Assets for Independence (AFI) Family Support 360 Individual Development Account (IDA) Initiative. There is a growing awareness among AFI program grantees and their partner organizations that some people with disabilities, and their families, have a difficult time accessing and using IDA services. In response to this need, this initiative provides AFI grantees and their partner organizations with training and technical assistance for providing IDA services to this important population.

Navigator Guiding Principles Microsoft Word Document
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This document was compiled by the FS 360 Navigator Role Workgroup. The principles are intended to assist Navigators in their work with families, and to help Administrators with training new Navigators. It is expected that each one-stop will modify the content and format based on its unique needs and design. Some principles adapted from the Oklahoma Individual and Family Support Principles developed by the Oklahoma Family Support Partnership Council.

Navigator Role Description Microsoft Word Document
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This document was created by the FS 360 Navigator Role Workgroup. The description is intended to clarify the role of Navigators in order to support their efforts with families and assist in minimizing the stress that may arise from unclear roles and boundaries. Please add, remove, and/or edit the material as appropriate; it is expected that each one-stop will modify the content based on their unique needs and design of the center.

Navigator Role Family-Friendly Description Microsoft Word Document
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This document was created by the FS 360 Navigator Role Workgroup. The description is intended to clarify the role of Navigators in order to assist families in understanding how Navigators can help them. This document was written at an 8th grade reading level. Please add, remove, and/or edit the material as appropriate; it is expected that each one-stop will modify the content based on their unique needs and design of the center.

Request for Proposals: Family Support 360 — 2004 Adobe Acrobat Document
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This is the original Family Support 360 program announcement to fund One-Stop Centers for families with members with developmental disabilities.

Working Toward Sustainable Futures: Establishing a “Next Generation” of Family Support Services Adobe Acrobat Document
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This information brief examines the challenges faced by a “next generation” of individuals with developmental disabilities and supporting family members, as well as challenges facing policymakers to support individual and family needs. The brief includes a description of the Family Support 360 initiative goals, as well as results from the survey conducted by the 360 Sustainability Workgroup. The brief was authored by John Agosta, Kerri Melda and Valerie Bradley at the Human Services Research Institute, the Oregon Family Support 360 grantee.

Finance

Asset Development Resources
This page contains resource links and documents from a variety of sources.

Building Wealth
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Building Wealth: A Beginner's Guide to Securing Your Financial Future, published by the Federal Reserve Bank of Dallas, offers introductory guidance to individuals and families seeking help in developing a plan for building personal wealth. This document presents an overview of personal wealth-building strategies, budgeting, saving and investing, taking control of debt, and protecting your wealth. Also available in Spanish.

Earned Income Tax Credit
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The Earned Income Tax Credit or the EITC is a refundable federal income tax credit for low to moderate income working individuals and families. The EITC has no effect on certain welfare benefits. In most cases, EITC payments will not be used to determine eligibility for Medicaid, Supplemental Security Income (SSI), food stamps, low-income housing or most Temporary Assistance for Needy Families (TANF) payments. This site provides eligibility information and tools, frequently asked questions, and instructions on claiming the credit. (supplied by the Internal Revenue Service)

Family Tax Credit ResourcesMicrosoft Word Document
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This document provides links to several tools designed to help families prepare for tax-filing season. The resources include state-specific information and a toolkit for advocates. (supplied by the National Women's Law Center)

Financial Education Curricula and Programs
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This section of the Federal Reserve Bank of Boston's Web Site contains links to financial education curricula and programs, many of which are written on a teen/adult and elementary level.

How the Economic Stimulus Plan Affects Individuals with Disabilities Microsoft Word Document
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The $789 billion U.S. economic stimulus package, which was signed into law February 17, 2009 by President Obama, contains numerous tax provisions including $282 billion in tax cuts. This fact sheet outlines several of the major tax provisions and other forms of assistance incorporated in the bill. (supplied by Real Economic Impact Tour, an initiative of the National Disability Institute)

Jumpstart's Reality Check
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Jumpstart's Reality Check is an online program for teens and adults that shows participants what it takes to live the life they want, what they'll need to do to get themselves there, and provides a list of careers that support this lifestyle.

Learning About Money Adobe Acrobat Document
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Learning About Money, published by the Federal Reserve System, is a brief document with tips on goal setting, budgeting and saving money, credit and credit ratings, and borrowing money. Also available in Spanish.

LifeSmarts: The Ultimate Consumer Challenge
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LifeSmarts: The Ultimate Consumer Challenge is an educational opportunity that develops the consumer and marketplace knowledge and skills of teenagers in a fun way and rewards them for this knowledge. The program can be used as an activity for classes, groups, clubs, and community organizations. LifeSmarts, run as a game-show style competition, is open to all teens in the U.S. in the 9th through 12th grades. Teams of four to five teens compete in district and state matches with the state winners going to the national competition to vie for the national LifeSmarts title. LifeSmarts is a program of the National Consumers League. The program is completely accessible to students with disabilities.

Foreign Language Resources and Web Sites

Centers for Disease Control
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The Centers for Disease Control's (CDC) mission is "to promote health and quality of life by preventing and controlling disease, injury, and disability." The CDC web site is available in Spanish (Espanol) and 9 other languages: English, French (Francais), German (Deutsch), Tagalog, Italian (Italiano), Russian (PYCCKNN), Vietnamese (Tieng Viet), Chinese, and Korean. The link provided will take you to the Spanish language page where you can then link to the pages for the other languages. (supplied by implementation grantee, University of Missouri/Visions with Hope 360° Center)

Los CDC, como centinela que vela por la salud de las personas en los Estados Unidos y todo el mundo, se esfuerza por proteger la salud y seguridad de las personas, ofrecer información confiable sobre la salud y mejorar la salud a través de asociaciones sólidas.
http://www.cdc.gov/spanish

Centro de Ensenanza del Embarazo (March of Dimes)
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The March of Dimes' mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality. The March of Dimes carries out this mission through research, community services, education and advocacy to save babies' lives. (supplied by implementation grantee, University of Missouri/Visions with Hope 360° Center)

La misión de March of Dimes es mejorar la salud de los bebés al prevenir los defectos de nacimiento, el nacimiento prematuro y la mortalidad infantil.
http://www.nacersano.org/centro/9388_9974.asp

Child Welfare Information Gateway
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Formerly the National Clearinghouse on Child Abuse and Neglect Information and the National Adoption Information Clearinghouse, Child Welfare Information Gateway provides access to information and resources to help protect children and strengthen families. (supplied by implementation grantee, University of Missouri/Visions with Hope 360° Center)

Recursos en español sobre el abuso y la negligencia de menores, la prevención, los servicios de protección de menores, el cuidado de crianza (foster care), el cuidado de los niños fuera de casa, la permanencia y la adopción. Algunas publicaciones están disponibles en inglés y español.
http://www.childwelfare.gov/espanol/

Consent Form/Consentimiento de Informacion para la Investigacion
Adobe Acrobat Format Adobe Acrobat Document and MS Word FormatMicrosoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a Spanish language consent form. This document is in Spanish. (supplied by implementation grantee, Detroit Family Support 360°

Detroit Family Support 360° Project Brochure in SpanishAdobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This is a Spanish language brochure for the Detroit Family Support 360° project. (supplied by implementation grantee, Detroit Family Support 360°

Detroit Family Support 360° Project Overview/Proyecto de Ayuda a Familias de Detroit 360°
Adobe Acrobat FormatAdobe Acrobat Document and MS Power Point FormatMicrosoft Word Document
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This is a PowerPoint presentation detailing the Detroit Family Support 360° project, including project goals, eligibility, and benefits to the family. (supplied by implementation grantee, Detroit Family Support 360°

Family Support: A Check for Quality (in English Adobe Acrobat Document and Spanish Adobe Acrobat Document)
Evaluation Questionnaire for Web Site Resources
This document is a 4-page checklist developed by family members and professionals to help people determine if their family is receiving quality support. It includes a definition of family support and tips for working with professionals. (supplied by The Arc)

Family Support 360 Center/Centro de Apoyo Familiar 360 (in English Microsoft Word Document and Spanish Microsoft Word Document)
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This document was written to inform families and providers of the Basic services that the Oklahoma Family Support 360 Center will be providing. (supplied by implementation grantee, Oklahoma's Family Support 360)

Fundacion Excepcionales
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Fundacion Excepcionales is a non-profit organization dedicated to promoting and facilitating the equal inclusion of individuals with Down Syndrome or learning disabilities. Fundacion Excepcionales is a foundation that unites parents with professionals. (supplied by implementation grantee, University of Missouri/Visions with Hope 360° Center)

Fundacion Excepcionales es una organización sin fines de lucro, dedicada a promoveer y facilitar la inclusión de porsonas con síndrome de Down o dificultades educativas similares. Es una Fundación que reúne a mamás y papás que trabajan en conjunto con un grupo interdisciplinario de profesionales.
http://www.excepcionales.cl/home.php

Glossary of Assistive Technology Terms in Spanish/Glosario de Términos de la Tecnología Asistencial
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This document, from the Family Center on Technology and Disability contains a list of Assistive Technology Terms in Spanish.

El glosario que sigue a continuación podrá ayudar a los padres a aprender sobre los tipos de tecnología asistencial que hay disponibles y cómo pueden ser utilizadas.

Health and Financial Decisions: Legal Tools for Preserving Your Personal Autonomy/Decisiones de Salud y Monetarias (Financieras): Recursos Legales Para Mantener Sus Propios Deseos e Intereses Personales (in Spanish Adobe Acrobat Document and English Adobe Acrobat Document)
Evaluation Questionnaire for Web Site Resources
This consumer publication encourages seniors to use legal planning tools to ensure that their personal, health care and financial wishes are honored in the event they become sick, disabled or incapacitated. (supplied by the American Bar Association Commission on Law and Aging)

Independence, Productivity, Self Determination, Integration and Inclusion Definitions and Evaluation Forms (Spanish) Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
These are two evaluation forms and Independence, Productivity, Self Determination, Integration & Inclusion (IPSII) definitions in Spanish. The evaluation forms are used by participants in our Hispanic Outreach Program. These forms identify the four IPSII measures and provide a simple definition for each of these measures. (supplied by implementation grantee the Minnesota Governor's Council on Developmental Disabilities)

Individualized Family Plan and Inclusion Definitions and Evaluation Forms in Spanish
Adobe Acrobat Format Adobe Acrobat Document and MS Word FormatMicrosoft Word Document
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This is an individualized family plan in Spanish. (supplied by implementation grantee, Detroit Family Support 360°)

Intake and Referral Form in Spanish and Inclusion Definitions and Evaluation Forms in Spanish
Adobe Acrobat Format Adobe Acrobat Document and MS Word Format Microsoft Word Document
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This is a sample intake and referral form in Spanish. (supplied by implementation grantee, Detroit Family Support 360°)

LD Online
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LD OnLine seeks to help children and adults reach their full potential by providing accurate and up-to-date information and advice about learning disabilities and ADHD. The site features hundreds of helpful articles, monthly columns by noted experts, first person essays, children’s writing and artwork, a comprehensive resource guide, very active forums, and a Yellow Pages referral directory of professionals, schools, and products. Articles are available in English and Spanish (artículos en español e ingles). (supplied by implementation grantee, University of Missouri/Visions With Hope 360° Center)
http://www.ldonline.org/features/espanol

Medline Plus
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MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from the National Library of Medicine (NLM), the National Institutes of Health (NIH), and other government agencies and health-related organizations. Preformulated MEDLINE searches are included in MedlinePlus and give easy access to medical journal articles. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news. (supplied by implementation grantee, University of Missouri/Visions With Hope 360° Center)

MedlinePlus le ayuda encontrar las respuestas que usted busca en temas de salud. MedlinePlus ha recopilado la información más confiable proveniente de fuentes autorizadas tales como la Biblioteca Nacional de Medicina y los Institutos Nacionales de la Salud, así como otras agencias gubernamentales y organizaciones de servicios para la salud. MedlinePlus también le ofrece mucha información sobre medicamentos, una enciclopedia médica ilustrada, programas interactivos para el paciente y las más recientes noticias acerca de la salud.
http://medlineplus.gov/spanish/

National Dissemination Center for Children With Disabilities/Centro Nacional de Diseminación de Información para Niños con Discapacidades
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NICHCY serves the nation as a central source of information on:

  • Disabilities in infants, toddlers, children, and youth
  • IDEA, which is the law authorizing special education
  • No Child Left Behind (as it relates to children with disabilities)
  • Research-based information on effective educational practices
(supplied by implementation grantee, University of Missouri/Visions With Hope 360° Center)

NICHCY es la sigla del Centro Nacional de Diseminación de Información para Niños con Discapacidades. Servimos al país como fuente central de información sobre:
  • Las discapacidades que pueden tener los infantes, niños pre-escolares, estudiantes, y jóvenes adultos
  • IDEA (el Acta para la Educación de los Individuos con Discapacidades), la ley nacional de educación especial
  • No Child Left Behind (Que Ningún Niño se Quede Atrás), por la relación que esta ley tiene con las discapacidades
  • Información basada en la investigación sobre las prácticas educativas efectivas
http://www.nichcy.org/spanish.htm

National Institute of Neurological Disorders and Stroke
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This web site offers publications in Spanish (Publicaciones en Español ) from the National Institute of Neurological Disorders and Stroke. (supplied by implementation grantee, University of Missouri/Visions With Hope 360° Center)
http://www.ninds.nih.gov/disorders/spanish/index.htm

Oklahoma Individual and Family Support Principles to Practice Indicators in Spanish Adobe Acrobat Document
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This document identifies actions and self-check questions for families, individuals with disabilities and service providers. These products were developed by the Oklahoma Family Support Partnership, a Project of National Significance in Family Support funded primarily by the US Administration on Developmental Disabilities with contributions from the Oklahoma Department of Human Services, Developmental Disabilities Services Division, and the University of Oklahoma Health Sciences Center. (supplied by implementation grantee, Oklahoma's Family Support 360)

PBS Parents
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This web site provides information about children's development from birth through the early school years. PBS Parents also provides fun educational activities for children to help get them ready for school. (supplied by implementation grantee, University of Missouri/Visions With Hope 360° Center)

Usted encontrará el contenido en español del sitio a lo largo de "PBS Parents", "PBS Kids" y "PBS.org". Los enlaces que presentamos a continuación le llevarán directamente a la información en español dirigida a los padres.
http://www.pbs.org/parents/siteguide/spanish/howto_spanishcontent.html

Proyecto Vision
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Proyecto Visión is a bilingual project to connect Latinos with disabilities to employment opportunities. (supplied by implementation grantee, University of Missouri/Visions With Hope 360° Center)

Una pagina bilingue de la red para Latinos con discapacidad.
http://www.proyectovision.net/index_spa.html

Spanish Language Resource Catalogue
Adobe Acrobat FormatAdobe Acrobat Document and MS Word FormatMicrosoft Word Document
Evaluation Questionnaire for Web Site Resources
This document lists disability resources in Spanish and English. Topics include: el autismo (autism), la communicacion (communication), la crianza (raising children), la cultura (culture), las disccapacidades (disabilities), la disciplina (discipline), la escuela (schools), hermanos (siblings), el idioma (language), juegos y actividades (games and activities), la ley (legal matters), perdida de audicion y vista (hearing and sight loss), relaciones familiares (family relationships), la salud (health), la salud mental (mental health), el sindrome de down (down syndrome), lo social-emocional: edades y etapas (social-emotional: ages and stages). (supplied by implementation grantee, Juntos Podemos)

Understanding the Special Education Process
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This page contains information on the IDEA bill passed by Congress, and provides information specifically for parents so that they may better understand the special education process. Handouts are available in English, Spanish, Hmong, or Somali. (supplied by the Families and Advocates Partnership for Education)

Grantee Publications and Newsletters

Addressing the Field's Cultural Drought
Suggestions for Attracting and Retaining Bilingual and Bicultural Staff
by David Stadler, Luis Cordova, and Marcella McMurray
Evaluation Questionnaire for Web Site Resource
This article, authored by staff at the Mattie Rhodes Center (MRC), which houses the Missouri Family Support 360, was published in the March 2009 issue of Behavioral Health Care magazine. Approximately 94% of the MRC's mental health and social service clients identify as Latino, and MRC strives to be a leader on Latino issues and cultural competency. Using their experiences, the authors identify challenges to hiring bilingual and bicultural staff, as well as tips for hiring success. (supplied by Behavioral Healthcare)

Alaska: F2F Family Advisory Listserv
This list not only serves as a forum for messages between families, but is also a means of communication between the Stone Soup Group and families, professionals, educators, and the public. Those who subscribe to the listserv will also receive the Soup of the Week Newsletter. (supplied by the Stone Soup Group).

Facilitating Consumer Partnerships in State Policy and Program Design
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This guide, co-authored by Dr. Judith Holt of the Utah Family Support 360: Disability Support Center for Families, provides states agencies with practical guidelines and strategies to create and sustain partnerships with individuals with disabilities. (supplied by the Utah Family Support 360 Grantee).

Make a Difference for Children with Disabilities
A Guide to Serving on a County Family Support Advisory Committee
Evaluation Questionnaire for Web Site Resource
This publication from the Waisman Center at the University of Wisconsin—Madison was co-authored by Liz Hecht, Project Coordinator for the Wisconsin One-Stop Family Support Project. This booklet is designed to help families better understand the important role they play in shaping their local Family Support Programs and how they can become more effective participants and have their voice heard in Family Support Programs both locally and statewide. (supplied by the Wisconsin Family Support 360 Grantee)

Report to the Vermont Legislature: Serving People with Disabilities
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The intent of this report is to identify current practice in Family Services as related to working with children and parents with developmental disabilities and to identify preliminary recommendations for increasing disability awareness and responsivity in child welfare professionals and their community partners. In preparation of the report the Vermont Department of Children and Families was required to consult with the Family Support 360 Project at the University of Vermont. (supplied by the Vermont Family Support 360 Grantee)

Rhode Island: Paul V. Sherlock Center on Disabilities Mailing List
The Sherlock Center offers a variety of training opportunities, including topical workshops, conferences, and courses. The Center also disseminates topical newsletters to family members, educators, and other professionals on a variety of topics. The online subscription page provides an option to select email or US Mail as the preferred method of receiving information. (supplied by the Paul V. Sherlock Center on Disabilities at Rhode Island College)

Seeing With New Eyes: Metaphors of Family Experience Adobe Acrobat Document
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Susan Yuan, our Vermont grantee's co-director, published this article in Mental Retardation, Volume 41, Number 3: 207-211 (June 2003). The article reframes disability and looks at the power of metaphor when discussing or training individuals on disability. The article includes a visual metaphor exercise which can be incorporated into trainings. (supplied by the Vermont Family Support 360 Grantee)

We've got principles. Now what? Adobe Acrobat Document
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Published in the TASH Connections Newsletter, Volume 32, Issue 7-8, 2006, this article was written by Louis Worley, Jan Moss, and Vyonda Martin, the Oklahoma grantee's director. The article addresses the "next step in the evolution of how we promote supportive practices that are centered on individuals with disabilities and their families." Supporting documents referenced in this piece are available in the Best Practices and Lessons Learned section of the Resource Library. (Supplied by the Oklahoma Family Support 360 Grantee.)

Working Toward Sustainable Futures: Establishing a “Next Generation” of Family Support Services Adobe Acrobat Document
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This information brief examines the challenges faced by a “next generation” of individuals with developmental disabilities and supporting family members, as well as challenges facing policymakers to support individual and family needs. The brief includes a description of the Family Support 360 initiative goals, as well as results from the survey conducted by the 360 Sustainability Workgroup. The brief was authored by John Agosta, Kerri Melda and Valerie Bradley at the Human Services Research Institute, the Oregon Family Support 360 grantee.

Guardianship

The Guardian Vol. 1 Issue 2 Adobe Acrobat Document
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Produced by The Guardianship Project at the Missouri Planning Council for Developmental Disabilities, this newsletter is focused on providing guardianship information for increased self-determination. (published by Missouri Protection & Advocacy Services)

The Riot! Guardianship Issue
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The Riot! is a national e-newsletter for self-advocates from the Self-Advocate Leadership Network at the Human Services Research Institute. This issue is dedicated to issues around guardianship and self-advocacy. (supplied by The Riot!)

Healthy Relationships

National Conversation on Healthy Relationships
Audio CD of Teleconference Series
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Topics covered during the calls included the rights of individuals with developmental disabilities to have intimate relationships; the dynamics of a healthy, intimate relationship; issues of sexuality, personal safety and safe sex/birth control; and peer advice from self advocates. The CD is $10.00, which includes shipping and handling.
Order Form Adobe Acrobat Document
(supplied by The Riot!)

Housing

2006 HOME Investment Partnership Funds - Information Bulletin #246 Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This May bulletin provides information and statistics about HOME, a federally funded housing program that impacts people with disabilities. (provided by Steve Gold.)

2008 Annual Homeless Assessment Report to Congress
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This report, released by the Department for Housing and Urban Development in July 2009, provides the latest counts of homelessness nationwide, including individuals, persons in families, and special population groups such as veterans and chronically homeless people. The report also documents disabilities among people who are homeless.

Accessing Affordable and Appropriate Housing
Adobe Acrobat FormatAdobe Acrobat Document and MS Word FormatMicrosoft Word Document
Evaluation Questionnaire for Web Site Resources
This document, from the Beach Center on Disability, explains how to find affordable, appropriate housing and is a wonderful "starting place" for those looking for or assisting someone in looking for housing.

ADA Information Line
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The U.S. Department of Justice provides information about the Americans with Disabilities Act (ADA) through a toll-free ADA Information Line. This service permits businesses, State and local governments, or others to call and ask questions about general or specific ADA requirements including questions about the ADA Standards for Accessible Design. ADA specialists are available Monday through Friday from 9:30 AM until 5:30 PM (Eastern Time) except on Thursday when the hours are 12:30 PM until 5:30 PM. Spanish language service is also available. For general ADA information, answers to specific technical questions, free ADA materials, or information about filing a complaint, call: (800)514-0301 voice) or (800)514-0383 (TTY).

Assessing the Barriers to Community Living: Accessible Housing in a Rural State Adobe Acrobat Document
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This statewide community-based participatory action research study was conducted to identify opportunities and barriers for persons with disabilities in obtaining accessible, affordable housing in West Virginia. Using surveys and a facilitated group technique, persons with disabilities identified existing barriers and developed a set of questions for housing industry professionals. This article was published in "Housing and Society" the journal of the Housing Education and Research Association.

Government Funding to Support Homeless Programs
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Local homeless programs across America will receive an unprecedented $1.5 billion in Continuum of Care grants announced today by the U.S. Department of Housing and Urban Development. This historic-level funding will offer transitional and permanent supportive housing to more than 168,000 homeless individuals and families. (supplied by DisabilityInfo.gov)

HUD Information Sheet Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document provides information on several U.S. Department of Housing and Urban Development (HUD) programs that may be available to assist people with disabilities. Three major HUD programs are outlined: Section 811 Supportive Housing for Persons with Disabilities, the Housing Choice Voucher Program, and the Public Housing Program. (supplied by the U.S. Department of Housing and Urban Development)

In Search Of Home Sweet Home
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In this article, Mike Mayer and Derrick Dufresne, senior partners with the consulting firm Community Resource Alliance, address questions around residential options for people of all ages and abilities, and provide tools to assist with the creation of an individualized situation that best accommodates personal circumstances. (supplied by disabilityscoop)

Local Home Repair Programs
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The U.S. Department of Housing and Urban Development provides this list of local repair and rehabilitation programs by state. There are a variety of resources sponsored by states, local governments, and other organizations that can help with repairs and improvements for accessibility. (supplied by the U.S. Department of Housing and Urban Development)

USDA's Rental Assistance Program - Information Bulletin # 233Microsoft Word Document
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This January 2008 bulletin provides information and statistics about the USDA Rental Assistance Program, as well as links to search for multifamily USDA developments. (provided by Steve Gold.)

USDA Rural Development Housing and Community Facilities Programs
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Housing and Community Facilities Programs (HCFP) helps rural communities and individuals by providing loans and grants for housing and community facilities. HCFP provides funding for single family homes, apartments for low-income persons or the elderly, housing for farm laborers, childcare centers, fire and police stations, hospitals, libraries, nursing homes, schools, and much more. In partnership with non-profits, Indian tribes, state and federal government agencies, and local communities, HCFP creates packages of technical assistance and loan and grant funds to assist rural communities and individuals.

Immigration-Related Issues

Community Education Materials on Immigration Issues
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This page contains links to community education materials developed by the National Immigration Law Center and other agencies addressing issues of concern to low-income immigrants.

Federal Guidance on Public Charge: When Is It Safe to Use Public Benefits?
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The U.S. government has published guidance on the “public charge” rules — when receiving public benefits may affect your immigration status or your ability to travel outside of the U.S. The guidance explains when it is and is not safe to use public benefits. (supplied by the National Immigration Law Center)

Immigrants’ Rights Update Newsletter
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This quarterly newsletter from the National Immigration Law Center provides analyses and updates on current developments that impact low-income immigrants, including important court decisions, legislative proposals, new laws, and administrative policy.

State-Funded Benefits: Immigrant Eligibility
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These resources, developed by the National Immigration Law Center, include information on medical assistance programs, TANF (Temporary Assistance for Needy Families) and SSI (Supplemental Security Income) replacement programs, SCHIP (State Children's Health Insurance Program) programs, and food assistance programs. (supplied by the National Immigration Law Center)

Independent Living Skills

Everyday Budgeting & Money Savings Tips Adobe Acrobat Document
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This tip sheet offers suggestions on how to save money in the areas where people typically spend the most, including food, health care, transportation, and clothing. (supplied by the American Consumer Credit Counseling)

Goal Setting: Powerful Written Goals in 7 Easy Steps Microsoft Word Document
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This article by Gene Donohue suggests seven steps for writing complete and focused goals to be used as a roadmap to achievement. (supplied by Top Achievement)

How-To Guide to Goal Setting Microsoft Word Document
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This guide to setting financial goals describes three types of goals that should be considered. (supplied by the American Consumer Credit Counseling)

Life Skills Inventory: Independent Living Skills Assessment Tool Adobe Acrobat Document
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This sample assessment from the Washington State Department of Social & Health Services provides a checklist of life categories and skills within each category that can be used to make a determination as to the status of an individual's independent living skills.

Microsoft Word Budget Templates
Monthly Income/Expense Record Microsoft Word Document
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Monthly Budgeting Chart Microsoft Word Document
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These templates are examples of the variety of budgeting templates offered by Microsoft Word that can be modified to meet the specific needs of individuals and families.

Monthly Budget Worksheet (Basic) Adobe Acrobat Document
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This monthly line item budget worksheet includes instructions on how create a budget based on estimated income and expenses. (supplied by the American Student Assistance)

Monthly Budget Worksheet (Complex) Adobe Acrobat Document
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This monthly budget worksheet is a line item worksheet that can be used to track budgeted and actual amounts spent in a variety of areas, including housing, medical, and entertainment expenses. (supplied by the Freddie Mac)

Problem-Solving Adobe Acrobat Document
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This publication describes the problem-solving process by outlining six steps that families can follow while focusing on strengths and creating a successful, healthy family. (supplied by the Virginia Cooperative Extension)

SMART Goal Setting Microsoft Word Document
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This guide recommends using the acronym SMART (Smart Measurable Attainable Realistic Timely) as a tool to assist with the goal setting process. (supplied by the Goal Setting Guide)

The Universal Declaration of Human Rights
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The United Nations general assembly proclaimed the Universal Declaration of Human Rights on December 10, 1948. It adopted this declaration as a common standard of achievement for all peoples and all nations, to the end that every individual and every organ of society shall strive by teaching and education to promote respect for these rights and freedoms and by progressive measures, national and international, to secure their universal and effective recognition and observance, both among the peoples of Member States themselves and among the peoples of territories under their jurisdiction. (supplied by the United Nations)

Where Does My Money Go? Worksheet Microsoft Word Document
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On a weekly or monthly basis, this worksheet can be used as a line-by-line tracking tool to determine where an individual or family is spending its money. (This chart was adapted from Making It On Your Own, Region III Resource Center for Children, Youth, and Families, School of Social Work, Virginia Commonwealth University, Richmond, Virginia, 1983.)

Medicaid, Medicare, and Social Security Information

2005 State Medicaid Eligibility Cutbacks: Proposed and Recently-Enacted Microsoft Word Document
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This document details Medicaid eligibility cutbacks within each state. It provides with a State-by-State breakdown of the proposed and recently-enacted cutbacks. (supplied by the American Association of People with Disabilities)

A Case for Inclusion
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The ongoing national debate about Medicaid must involve more than budget appropriations. To this end, United Cerebral Palsy has issued A Case for Inclusion to spotlight how State Medicaid programs are serving people with DD and mental retardation. The analysis includes rankings for all 50 States and the District of Columbia, as well as letter grades in key Medicaid service areas. (supplied by United Cerebral Palsy)

Citizenship Guidelines for Medicaid EligibilityAdobe Acrobat Document
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This document, published by the Centers for Medicare & Medicaid Services, gives an overview of the new requirements on citizenship documentation for Medicaid benefits.

Disability Evaluation Under Social Security
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This edition of Disability Evaluation Under Social Security, (also known as the Blue Book), has been specially prepared to provide physicians and other health professionals with an understanding of the disability programs administered by the Social Security Administration. It explains how each program works, and the kinds of information a health professional can furnish to help ensure sound and prompt decisions on disability claims. (supplied by Social Security Online)

Expediting Medicaid Financial Eligibility Microsoft Word Document
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This issue brief, developed by the Lewin Group for the Aging and Disability Resource Centers (ADRC), provides information on presumptive and fast track Medicaid eligibility programs. (Aging and Disability Resource Centers Technical Assistance Exchange)

Frequently Asked Questions and Examples of Documentation of Citizenship for Medicaid RecipientsAdobe Acrobat Document
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This document, developed by the Centers for Medicare & Medicaid Services, gives answers to some frequently asked questions and examples of acceptable documentary evidence of citizenship for Medicaid recipients.

How To Apply for Social Security Disability Benefits
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This answer to a frequently asked question provides helpful contact information and resources related to the disability benefits application process, including a Disability Starter Kit. This kit prepares an applicant for a disability interview or online application. Kits are available in English and Spanish for adults and for children. (supplied by Social Security Online)

Medicaid Overview
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This page is an overview of the Medicaid Program, which provides medical benefits to low-income individuals who have no or inadequate medical insurance. (supplied by the Centers for Medicaid and Medicare Services)

Medicaid Special Enrollment Period for Hurricane Katrina Evacuees
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CMS will grant all Hurricane Katrina evacuees a special enrollment period (SEP) that gives them more time to change their Medicare prescription drug plans in 2006. Individuals will be considered "evacuees" and eligible for this SEP if they reside in certain zip codes as identified by the Federal Emergency Management Agency at the time of the hurricane (August 2005). Please refer to the spreadsheet linked above of designated zip codes. The special enrollment period means that Katrina evacuees will be able to switch plans, including Medicare prescription drug plans, at any time through Dec. 31, 2006. This special enrollment period allows Katrina evacuees to change regardless of a change in residence, such as if they have temporarily located, have moved back to their permanent home, or if there are other circumstances that require more time to choose or change plans. To determine if an individual is eligible for this SEP, Medicare plans must first attempt to obtain proof that the individual resided in an affected zip code (e.g., driver's license, utility bills, etc.). If the individual is unable to provide such proof, the plan must accept the beneficiary's attestation that he or she resided in an affected zip code.

Social Security Benefits for Children with Disabilities Booklet Adobe Acrobat Document
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This booklet is for the parents, caregivers or representatives of children under age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments. It is also for adults who became disabled in childhood and who might be entitled to Social Security Disability Insurance (SSDI) benefits. (supplied by Social Security Online)

Social Security Compassionate Allowances
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Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards. Compassionate allowances are a way of quickly identifying diseases and other medical conditions that invariably qualify under a listing of impairments based on minimal objective medical information. This site provides an initial list of Compassionate Allowances conditions, as well as information on how Compassionate Allowances are processed. (supplied by Social Security Online)

Social Security Disability Online: How to Appeal a Decision on a Claim
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This is the starting point to request a review of a medical decision about eligibility for disability benefits. There are two parts to this Internet Appeal process: (1) an Appeal Request Internet form and, (2) an Appeal Disability Report that provides more information about the disability. Both forms can be completed online. (supplied by Social Security Online)

Supplemental Security Income (SSI) Booklet Adobe Acrobat Document
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This booklet explains what Supplemental Security Income (SSI) is, who can get it and how to apply. It provides basic information and is not intended to answer all questions. The SSI program makes payments to people with low income who are age 65 or older or with a disability. (supplied by Social Security Online)

Medicare & You 2008 Government Handbook Adobe Acrobat Document
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From the Centers for Medicare and Medicaid Services, this document is the official government handbook with important information about 2008 costs, what is covered, preventive services, health plans, prescription drug plans, and rights and appeals. (supplied by Medicare.gov)

Rebalancing Long-Term Care: The Role of the Medicaid HCBS Waiver Program
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This paper reviews the history and background of the Medicaid home and community-based services (HCBS) waiver program. It describes the eligibility, benefits, and financing structure, as well as the trends in program expenditures over time. The paper considers the contribution of the HCBS waiver program toward improving access to community-based care for Medicaid beneficiaries who are elderly and disabled and discusses the barriers that remain. This paper also summarizes the provisions included in the recently enacted Deficit Reduction Act of 2005 that may further expand Medicaid HCBS and considers how it may continue the process of redefining the concept of long-term care.

Report from Kaiser Commission on Medicaid and the Uninsured Explores Medicaid's Current and Future Challenges in Providing Long-Term Care
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The Kaiser Foundation's Commission on Medicaid and the Uninsured has released a report that presents an overview of Medicaid as a provider of long-term care (LTC) and highlights policy challenges facing the Medicaid program today. The report is based on a roundtable discussion of policymakers and experts and draws from a body of health services research. By gathering evidence and presenting data to address key Medicaid policy issues, the report can serve as a foundation for the current and ongoing policy debate regarding Medicaid's future role as a provider of LTC services and supports for low-income elderly and disabled Americans. (supplied by the Kaiser Family Foundation)

The Medicare Modernization Act and ADRCs Microsoft Word Document
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This issue brief, developed by the Lewin Group for the Aging and Disability Resource Centers (ADRC), provides an overview of the Medicare Modernization Act, information on the enrollment process and the low income subsidy, issues related to the implementation of the drug benefit, and a timeline of key transition events. (Aging and Disability Resource Centers Technical Assistance Exchange)

Understanding Supplemental Security Income (SSI)
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The purpose of Understanding SSI is to inform beneficiaries, potential beneficiaries, advocates and others in interested agencies and organizations about SSI eligibility requirements and processes. Understanding SSI is useful as a training manual and reference tool, but is not a complete review of all SSI related rules and policies. Individual case information should be discussed with the experts at Social Security. (supplied by Social Security Online)

What is the difference between Medicare and Medicaid?
Evaluation Questionnaire for Web Site Resources
This U.S. Department of Health & Human Services resource provides brief descriptions of both programs, as well as links to more extensive information on each. (supplied by DisabilityInfo.gov)

Military

DOD Dictionary of Military Terms
Evaluation Questionnaire for Web Site Resources
From this page you can browse the Department of Defense Dictionary of Military and Associated Terms, as well as Joint Acronyms and Abbreviations. The database is managed by the Joint Doctrine Division, J-7, Joint Staff.

Exceptional Family Member Program (EFMP) Information by Branch
Evaluation Questionnaire for Web Site Resources
The following MilitaryHOMEFRONT Web pages detail the personnel and family support functions of the EFMP under each branch of service. They also provide the regulations under which services are provided.

Practical Lessons for Health Care Reform from the Military Health System
Evaluation Questionnaire for Web Site Resources
This issue brief presents findings from a study of the military health system that have timely implications for health care reform. The findings suggest that universal coverage alone is unlikely to solve many of the problems in our current system without other changes. While universal coverage represents a critical step to improving health care in the United States, the research suggests that other actions, such as strengthening primary care and public health initiatives, will also be necessary to solve these problems. (supplied by Mathematica Policy Research)

SAMHSA Resources for Veterans and Their Families
Evaluation Questionnaire for Web Site Resources
This collection of resources includes Webcasts and conferences, information on identifying mental health and substance abuse services, information for families coping with trauma, and statistics related to veterans and mental health. (supplied by the Substance Abuse & Mental Health Services Administration)

Opportunities, Grants and Scholarships
(Listed by submission deadline, if applicable)

Grants.gov
Evaluation Questionnaire for Web Site Resources
Grants.gov is a central storehouse for information on over 1,000 grant programs and access to approximately $400 billion in annual awards. By registering once on this site, your organization can apply for grants from the 26 federal grant-making agencies. To receive email notifications about new funding opportunities, subscribe here.

Military Heroes Initiative: Voting Technology and Accessibility Research
Evaluation Questionnaire for Web Site Resources
This $500,000 grant competition is focused on improving voting technology and accessibility for recently injured military personnel. The research will result in a better understanding of how to enhance, augment, and develop voting equipment and improve election processes and voting technology needed for this population and others with disabilities. The application deadline is June 16, 2010. (supplied by the U.S. Election Assistance Commission)

DoSomething.org Grant Information
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Dosomething.org offers weekly grants for young social entrepreneurs and a database of grants available for youth.

Financial Aid and Scholarships for Individuals with Disabilities
Evaluation Questionnaire for Web Site Resources
This page provides numerous opportunities and resources related to higher education opportunities and financial assistance programs, including scholarship and loan information, for people with disabilities. Application submission deadlines vary by opportunity.

Foundation Center
Evaluation Questionnaire for Web Site Resources
The Foundation Center connects nonprofits and the grantmakers supporting them to tools and information. The Center maintains a comprehensive database on U.S. grantmakers and their grants. It also operates research, education, and training programs designed to advance philanthropy at every level. To receive email notifications about new funding opportunities, subscribe here.

Public Service Internship Program for College Students with Disabilities
Evaluation Questionnaire for Web Site Resources
Students with disabilities who participate in The Washington Center's internship program for the summer, spring or fall term are eligible to receive a $2,500 scholarship to help cover the cost of housing fees. Students from all majors are eligible to apply and gain internship experience in their field. The Washington Center helps students develop leadership skills and gain valuable work experience in their fields of interest. Deadlines vary. (supplied by The Washington Center)

UnitedHealthcare Children's Foundation's Medical Assistance Grants
Evaluation Questionnaire for Web Site Resources
UnitedHealthCare Children's Foundation offers grants to help parents and caretakers pay for children's medical needs and equipment that are not fully covered by insurance. Parents and caretakers are eligible to apply for grants up to $5,000 for health care services that will help improve their children's health and quality of life. Examples of medical services covered by the grants include speech and physical therapies and medical equipment, such as wheelchairs. To be eligible, children must be 16 years of age or younger. Families must meet economic guidelines, reside in the U.S., and be covered by a commercial health insurance plan.

UCP Research and Educational Foundation Grant
Evaluation Questionnaire for Web Site Resources
The United Cerebral Palsy Research and Educational Foundation provides funding for pilot studies on research important to the prevention and treatment of cerebral palsy, including improvement in the quality of life of persons with disabilities due to cerebral palsy and closely related developmental brain disorders. This broad research agenda includes basic, clinical and applied research in the biomedical and bioengineering sciences. Grants are generally awarded for up to 2 years at a maximum of $50,000 a year.

Vanderbilt Master's Degree in Education of Individuals with Hearing Impairments
Evaluation Questionnaire for Web Site Resources
This graduate program in the Vanderbilt Department of Hearing and Speech Sciences prepares students as teachers of children with hearing impairments. The one- to two-year program emphasizes development of spoken language and auditory skills for children with hearing impairments. Student scholarships are available for this program. (supplied by the Vanderbilt Bill Wilkerson Center)

Parent, Advocate, and Caregiver Resources

Basics for Parents: Your Child’s Evaluation
Evaluation Questionnaire for Web Site Resources
This is the first in a series of "Basics for Parents" publications from the National Information Center for Children and Youth with Disabilities, and is written in easy-to-understand terms. Your Child's Evaluation describes the steps a school system will take to evaluate a child to determine if he or she has a disability and is eligible for special education. (supplied by the National Information Center for Children and Youth with Disabilities)

Care Notebook
Evaluation Questionnaire for Web Site Resources
A Care Notebook helps parents/caregivers maintain an ongoing record of a child's care, services, providers, and notes. This web site is designed to assist families to build personalized care notebooks for their children with special needs. The web site allows parents to select sections from different versions of care notebooks to create a customized care notebook. (supplied by the National Center of Medical Home Initiatives for Children with Special Needs)

Caregiver's Handbook
Evaluation Questionnaire for Web Site Resources
This guide will help caregivers navigate the complexities of eldercare information and services, find national and local organizations, and choose the appropriate services and resources. The Handbook is also appropriate for those considering their own needs as they age. (supplied by PBS)

Caregiving Across the States: A State-by-State Resource
Evaluation Questionnaire for Web Site Resources
This interactive database provides information on publicly-funded caregiver support programs in each of the 50 states and the District of Columbia. It includes information on programs funded through the National Family Caregiver Support Program, Aged/Disabled Medicaid waivers, and state-funded programs that either have a caregiver-specific focus or include a family caregiving component in their service package. (supplied by the Family Caregiver Alliance)

Caring for Someone With Developmental Disabilities
Adobe PDF Adobe Acrobat Document or Microsoft Word Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This fact sheet, developed by the Administration on Aging, is for aging parents and other caregivers of those with developmental disabilities. (supplied by Administration on Aging)

Caring for Your Parents
Evaluation Questionnaire for Web Site Resources
The reality of an aging population unfolds in this 90-minute documentary. Five families are spotlighted as they cope with tension among siblings, shifting caregiver roles, and the difficulties of keeping aging parents at home. Following the film, Art Ulene, a former medical correspondent for NBC News, hosts a 30-minute panel discussion that offers advice on caregiving. This program can be viewed and purchased online. (supplied by PBS)

The Comfort of Home: Caregiver Resources
Evaluation Questionnaire for Web Site Resources
The Comfort of Home™ caregiver books and caregiving training series is a trademark of CareTrust Publications, an independent multi-language publisher committed to providing high quality, user-friendly information to those who face their own aging or the responsibilities of caring for family, friends, or clients. CareTrust provides assistance to caregivers and organizations through caregiver training guides, caregiver journal, caregiver videos, caregiver newsletters, and caregiver instructor training materials. (supplied by CareTrust Publications, LLC)

Dental Care Every Day: A Caregiver's Guide
Evaluation Questionnaire for Web Site Resources
This guide provides steps to maintaining good oral health for family members or clients with special needs. (supplied by the National Institute of Dental and Craniofacial Research, National Institutes of Health)

Developmental Milestones: Interactive Tool
English | Spanish
Evaluation Questionnaire for Web Site Resources
This interactive tool allows you to view how a developmental milestone category (social and emotional, cognitive, or language) changes as a child grows. (Supplied by the National Center on Birth Defects and Developmental Disabilities)

Disability is Natural E-Newsletter
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Each E-newsletter includes a feature article, information about new products, a listing of new (at the time) articles on the Revolutionary Common Sense (RCS) page, and other information by Kathie Snow.

Family-Centered Care Tools
Evaluation Questionnaire for Web Site Resources
These newly-published Family-Centered Care Self-Assessment Tools are designed as an opportunity for health care practices and families to assess current areas of strength and identify areas for growth, plan future efforts, and track progress toward family-centered care. There are separate tools for families and providers, along with a user guide. (supplied by Family Voices)

Family Care Navigator
Evaluation Questionnaire for Web Site Resources
This state-by-state resource is intended to help caregivers locate government, nonprofit, and private programs. It includes services for family caregivers, as well as resources for older adults and adults with disabilities who are living at home or in a residential facility. It also includes information on government health and disability programs, legal resources, and condition-specific organizations. (supplied by the Family Caregiver Alliance)

Family Handbook on Future Planning Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a guide to help families develop a future plan for their sons or daughters with cognitive, intellectual, or developmental disabilities that provides personal, financial, and legal protections for these individuals after the parents either die or can no longer provide care or support. It is not designed to be a “do-it-yourself” guide to will writing, trust development, and other legal processes. Instead, it will help families review and inventory the needs and strengths of their family member(s), determine what should be in a plan, and then locate qualified professionals and resources to finalize the plan. (supplied by The Arc)

Family History - An Early Warning for Your Child (Podcast)
Evaluation Questionnaire for Web Site Resources
Collecting family history information could save a child's life. Listen to this podcast to learn more about how knowing family history information can benefit the entire family. (provided by the Centers for Disease Control and Prevention.)

Family Support: A Check for Quality (in English Adobe Acrobat Document and Spanish Adobe Acrobat Document)
Evaluation Questionnaire for Web Site Resources
This document is a 4-page checklist developed by family members and professionals to help people determine if their family is receiving quality support. It includes a definition of family support and tips for working with professionals. (supplied by The Arc)

First Steps: A Guide for Parents of Children with Developmental Disabilities
Evaluation Questionnaire for Web Site Resources
This guide for parents of children with developmental disabilities covers such topics as acceptance, services, and the rights of people with disabilities. The guide has recently been revised and can be downloaded or ordered in a printed format in English and Spanish. (supplied by the Florida Developmental Disabilities Council)

Grandparent Resources
Adobe PDF Adobe Acrobat Document or Microsoft Word Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This fact sheet provides a wide variety of resources and links to organizations providing assistance to grandparents and other caregivers. (supplied by Administration on Aging)

Grief Resources Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
Created by the Substance Abuse and Mental Health Services Administration (SAMHSA), this document provides basic information on grief and grieving, as well as several Web sites and organizations that provide information and support around grief issues. (supplied by SAMHSA's National Mental Health Information Center)

Guide for Parents of Young Adults with Developmental Disabilities Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This booklet is designed to help families understand what happens when an individual with an intellectual disability turns 18. It includes sections on rights and responsibilities, guardianship and other alternatives, terminology, and resources. (supplied by the North Carolina Council on Developmental Disabilities)

The Invisible Care Gap: Caregivers without Health Coverage
Evaluation Questionnaire for Web Site Resources
This report, based on the most recent data available from the U.S. Census Bureau and Bureau of Labor Statistics, provides a snapshot of the health insurance status of our nation’s caregivers. The picture that emerges illustrates the economic and health insecurity of this workforce, a workforce that Americans are increasingly dependent upon for services and support. (supplied by PHI)

Managing Supports in Your Home Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a guide for families using family subsidy dollars to purchase in-home services. This manual was designed to empower families to successfully employ in-home support workers with an understanding of the risks and benefits of acting as an employer. (supplied by planning grantee, North Dakota Family Support One-Stop)

National Respite Locator Service
Evaluation Questionnaire for Web Site Resources
The National Respite Locator Service helps parents, caregivers, and professionals find respite services in their local areas that match their specific needs. Use the "Search for Respite" feature to find the programs in your city that provide specific services or use the "State Listings" feature for a listing of all the respite providers in your state. (supplied by Chapel Hill Training - Outreach Project, Inc.)

NCLB and IDEA: What Parents of Students With Disabilities Need to Know and Do
Evaluation Questionnaire for Web Site Resources
This guide from the National Center for Educational Outcomes informs parents of students with disabilities about The No Child Left Behind Act (NCLB) and the Individuals with Disabilities Education Act (IDEA), two of the most important federal laws relating to public education. (supplied by implementation grantee Education Resources Information Center)

Parent Leadership Training Curriculum
Evaluation Questionnaire for Web Site Resources
This new leadership training curriculum helps empower parents of children with disabilities to advocate for change in their communities. The Parents as Collaborative Leaders curriculum, a project of the University of Vermont and PACER, is now available as ten PowerPoint modules. Module topics include Critical Elements of Collaboration, Tips for Leading Effective Meetings, and Effective for Group Problem-Solving.(supplied by the Parents as Collaborative Leaders project)

Partners in Policymaking Online Courses
Evaluation Questionnaire for Web Site Resources
Partners in Policymaking was created in Minnesota by the Governor's Council on Developmental Disabilities in 1987. Partners in Policymaking is an innovative, competency based leadership training program for adults with disabilities and parents of young children with developmental disabilities. The purpose of the program is twofold: to teach best practices in disability, and to teach the competencies of influencing public officials. (supplied by the Minnesota Family Support 360)

Powerful Tools for Caregivers
Evaluation Questionnaire for Web Site Resources
Powerful Tools for Caregivers is a six-week education program for family and friends caring for older adults who have stroke, Alzheimer's, Parkinson's disease or similar long-term conditions. The class provides family caregivers with the skills and confidence to better care for themselves while caring for others. Many caregivers have found the class beneficial, including those caring for a spouse or partner and adult children caring for parents. You can also order the Caregiver Helpbook, designed to provide caregivers the tools to increase their self-care and confidence in handling difficult situations, emotions, and decisions. (supplied by the Legacy Health System)

The Riot!Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
The Riot! is a national e-newsletter for self-advocates from the Self-Advocate Leadership Network at Human Services Research Institute. A self-advocate is somebody who has a disability and speaks up for themselves. Are you a self-advocate? If you are, then The Riot! is for YOU! (supplied by implementation grantee, Together We Can: A One-Stop Center for Families)

The Sarah Jane Brain Foundation
Evaluation Questionnaire for Web Site Resources
The Sarah Jane Brain Foundation has launched the first phase of The Sarah Jane Brain Project through the web portal. The site uses the principles of Open Source with a person's medical records for the first time in history and aims to bring parents and professionals dealing with children suffering from Pediatric Traumatic Brain Injury (PTBI) together in an open and free forum. The first phase displays Sarah Jane Donohue as the model for Open Source Medicine by freely and completely disseminating all of Sarah Jane's medical records and videos of therapy treatments. This first phase will recruit additional children suffering from PTBI from around the world to be part of the Project and recruit parents and professionals from around the world to be part of the different Advisory Boards being established. Sarah Jane Donohue is a two-year old who was shaken by her baby nurse when she was only five days old and suffered a severe brain injury.

Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners
Evaluation Questionnaire for Web Site Resources
This inventory represents a select group of caregiver assessment measures specifically chosen for practical application by practitioners who work with family and informal caregivers of older persons and adults with disabilities. The purpose of this inventory is to provide a compendium of caregiver assessment measures that is practice-oriented, practical and applicable, and which conceptually addresses the multidimensional aspects of the caregiving experience. (supplied by the Family Caregiver Alliance)

Self-Directing Supports: A Guide for Families Seeking Choice and Control
Introduction Microsoft Word Document
Decision Making Microsoft Word Document
Person Centered Planning Microsoft Word Document
Self Directing Supports Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
Self-directed supports give people with disabilities and their families the freedom to direct resources to achieve a meaningful life in their community. Self-directed supports use public funding as an investment in the lives of children and families. This manual explains self-directing supports and will help people decide whether these supports are right for them. (supplied by planning grantee, North Dakota Family Support One-Stop)

Since You Care: Hiring An Independent Caregiver
Evaluation Questionnaire for Web Site Resources
This consumer guide from MetLife is one in a series done in cooperation with the National Alliance for Caregiving. It provides information to family caregivers about locating potential home care aides, screening applications, conducting interviews, running background checks and administering payroll, including social security and other taxes. It also provides helpful resources, including books, publications, websites, and a sample contract. (supplied by MetLife)

Special Needs Parent Toolkit
Evaluation Questionnaire for Web Site Resources
This guide from the Department of Defense aims to help military families and others with special needs children navigate the maze of medical and special education services, community support, and benefits and entitlements. (supplied by Military HOMEFRONT)

Taking Care of YOU: Self-Care for Family Caregivers
Evaluation Questionnaire for Web Site Resources
This sheet is designed to assist caregivers in taking care of themselves, which is essential to best care for another person. (supplied by the Family Caregiver Alliance)

Understanding the Special Education Process: An Overview for Parents (inEnglish Link to a page to download the Adobe Acrobat Reader, Hmong Adobe Acrobat Document, Somali Adobe Acrobat Document , and Spanish Adobe Acrobat Document)
Evaluation Questionnaire for Web Site Resources
This handout provides a basic overview of the steps in the special education process in English, Spanish, Hmong, or Somali. It shows what happens from the time a child is referred for evaluation and is identified as having a disability through the development of an Individualized Education Program (IEP). While this easy-to-understand brief is written for parents, it is an ideal overview for regular education teachers, aides, and paraprofessionals who are new to the special education process. Principals and special education teachers may want to keep copies on hand to give to parents and others. (supplied by the National Information Center for Children and Youth with Disabilities)

Working Caregivers: Finding a Balance
Adobe PDF Adobe Acrobat Document or Microsoft Word Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This fact sheet offers caregivers who work outside the home information on how to cope with the stress and emotions related to caregiving and suggestions on how to better balance caregiving and work responsibilities. (supplied by Administration on Aging)

Parents With Disabilities

Building Foundations: A Curriculum Guide for Supported Parenting
Evaluation Questionnaire for Web Site Resources
This guide is a resource for supporting parents with cognitive disabilities. It focuses on specific teaching strategies known to be successful with persons with cognitive disabilities, and presents these strategies in the context of parenting skills. Ten areas pertinent to parenting and independent living skills are included. In addition to strategies, the guide contains a conceptual framework, best practices and both specific and generic resources. This resource can be purchased online. (supplied by the Kennedy Krieger Institute)

Building Statewide Capacity in Vermont for Parents with Intellectual and Cognitive Challenges
Evaluation Questionnaire for Web Site Resources
This presentation was created by Susan Yuan, Ph.D., of the Vermont Family Support 360, and Sheila Duranleau of Vermont Family Services. It outlines lessons learned from working with parents with disabilities in Vermont, including successful methods in peer navigation, systems and legislative advocacy, and parent training.

Curricula for Supporting Parents with Cognitive Limitations Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This list of training curricula was developed by Cathy Haarstad of the North Dakota Center for Persons with Disabilities.

“Healthy Start.” A National Strategy for Parents With Intellectual Disabilities and Their Children
Evaluation Questionnaire for Web Site Resources
The Australian government has funded a capacity-building model known as Healthy Start: A National Strategy for Children of Parents with Intellectual Disabilities as part of its Stronger Families and Communities strategy. This paper presents this model for building systems capacity that addresses on the one hand, practitioner commitment, knowledge, and skills, and on the other, the parent education and community development resources needed to support parents with intellectual disability and promote a healthy start to life for their young children. (supplied by Journal of Policy and Practice in Intellectual Disabilities)

Legal Issues for Parents With Disabilities in Child Protection Proceedings
Evaluation Questionnaire for Web Site Resources
This document contains information and resources addressing legal issues facing parents with disabilities whose children are taken into state's custody. (supplied by Vermont Legal Aid)

Local Support for Parents in Rhode Island With Cognitive Challenges
Evaluation Questionnaire for Web Site Resources
This PowerPoint presentation provides an overview of the challenges parents with cognitive disabilities face as well as how to support those parents. This is based on Rhode Island's model, and the presentation is by Dr. John Susa. (supplied by implementation grantee, Rhode Island Family Support 360)

Outgrowing Your Parents at 8 Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a profile of a family whose parents both have developmental disabilities. This was written by Rene Denfeld and published in the New York Times Magazine on March 22, 1998.

Parents With Developmental Disabilities in New Mexico: Needs and Supports Findings From Focus GroupsAdobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This report covers the second phase of a two-part study conducted by the New Mexico Developmental Disability Planning Council and the Center for Development and Disability. The first part reports on survey findings, and the second part reports on focus group findings. (supplied by implementation grantee Project Pueblo Connections)

Parents With Developmental Disabilities in New Mexico: Needs and Supports Survey FindingsAdobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
The New Mexico Developmental Disability Planning Council, working with the Center for Development and Disability, initiated a survey of agencies/organizations providing services that potentially reach parents with developmental disabilities. This document provides the survey findings. This is the first of a two-part study; the follow up study includes findings from focus groups. (supplied by implementation grantee Project Pueblo Connections)

Proceedings of the Strengthening Every Family Forum on Supporting Parents Who Have Learning Difficulties
Evaluation Questionnaire for Web Site Resources
Key individuals and agencies from the Department of Human Services and the community services sector working in parent support, intellectual disability, child protection and advocacy came together at this forum. The aim of the forum was to facilitate the development of an action plan for statewide and regional groups to more effectively address the needs of parents who have learning difficulties. Discussions focused on addressing the multiple disadvantages these parents face in keeping their families together. (supplied by the Office of the Public Advocate)

Resources for Parents with Disabilities Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document is a collection of Web sites and training curricula recommended by Susan Yuan, Ph.D. of the Vermont Family Support 360. Suggestions include a pictorial guide to child care and a health program for families at risk.

Sample Workshop Outline: Supporting Parents with Disabilities Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This outline was created by Susan Yuan, Ph.D., of the Green Mountain Family Support 360 Project in Vermont. Currently used during a workshop for caseworkers and other community partners in Vermont, it provides a sample structure for a one-day training.

Strategies and Adaptations in Working with Parents with Intellectual Disabilities
Evaluation Questionnaire for Web Site Resources
This guide provides helpful information and concrete ideas for working successfully with parents with intellectual disabilities. This resource can be purchased online. (supplied by Through the Looking Glass)

Supporting Adults With Physical Disabilities Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This issue brief, developed by the Lewin Group for the Aging and Disability Resource Centers (ADRC), provides background information on characteristics of individuals with physical disabilities, describes the major information and service needs of this population, and reviews the existing supports and services system, including philosophical similarities and differences in supporting younger adults with physical disabilities as compared to the older adult population. (supplied by the Aging and Disability Resource Centers Technical Assistance Exchange)

Supporting Families When Parents Have Intellectual Disabilities Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
The manual offers practical suggestions and resources that should make it easier for providers to step out of traditional roles and reach out to parents with pervasive and lifelong learning challenges. It is also hoped that the use of these strategies will lead to the development of integrated service delivery. (supplied by planning grantee, North Dakota Family Support One-Stop)

Supporting Parents With Disabilities Presentation
Evaluation Questionnaire for Web Site Resources
This is a presentation by Susan Yuan for the November 1, 2005 "Responding to the Needs of Parents with Developmental Disabilities" conference call. (supplied by implementation grantee, Green Mountain Family Support 360 Implementation)

Supporting Parents With Disabilities Resources Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document provides a list of resources-Web sites, print resources and assessment tools-for organizations that support parents with developmental disabilities. (supplied by implementation grantee, Green Mountain Family Support 360 Implementation)

Supporting Parents With Disabilities Workshop Overview Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document provides an outline for a workshop designed for organizations to use with child protection agencies and community partners. (supplied by implementation grantee, Green Mountain Family Support 360 Implementation)

Virginia Child Protection Newsletter, Winter 2000, Volume 57
Evaluation Questionnaire for Web Site Resources
This newsletter was referenced by Dr. Susan Yuan in her presentation on Supporting Parents with Developmental Disabilities and Working with the Child Protection System during the November 1, 2005 conference call, "Responding to the Needs of Parents with Developmental Disabilities." Volume 57 of the newsletter addresses solutions to working with parents with DD. (supplied by James Madison University, Department of Psychology and the Virginia Department of Social Services)

People First Language and Community Inclusion

Convention on the Rights of Persons with Disabilities
Evaluation Questionnaire for Web Site Resources
The Convention is intended as a human rights instrument with an explicit, social development dimension. It adopts a broad categorization of persons with disabilities and reaffirms that all persons with all types of disabilities must enjoy all human rights and fundamental freedoms. It clarifies and qualifies how all categories of rights apply to persons with disabilities and identifies areas where adaptations have to be made for persons with disabilities to effectively exercise their rights and areas where their rights have been violated, and where protection of rights must be reinforced. This site includes complete text from, guiding principles of, and outcomes from the Convention. (supplied by United Nations Enable)

Including Samuel
Evaluation Questionnaire for Web Site Resources
Before his son Samuel was diagnosed with cerebral palsy, photojournalist Dan Habib rarely thought about the inclusion of people with disabilities. Now he thinks about inclusion every day. Shot and produced over four years, Habib's award-winning documentary film, Including Samuel, honestly chronicles the Habib family's efforts to include Samuel in every facet of their lives. The film also features four other families with varied inclusion experiences, plus interviews with dozens of teachers, young people, parents and disability rights experts.

People First Guide
English Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a one-page informational guide for families and providers to promote awareness of People First language, specifically it assists those providing services to those with disabilities to put the person first. (supplied by Oklahoma's Family Support 360)

People First Language by Kathie Snow
Evaluation Questionnaire for Web Site Resources
This article by Kathie Snow of Disability is Natural describes People First language and why it is important by providing explanations of inaccurate descriptors, conventional wisdom, and a new paradigm. It also includes a chart of People First Language examples. To access this article, click the link above and scroll down to the "People First Language" link. (supplied by Disability is Natural)

People First Language Brochure
English: Adobe PDF Adobe Acrobat Document Microsoft Word Microsoft Word Document
Spanish: Adobe PDF Adobe Acrobat Document Microsoft Word Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This brochure from the Idaho Council on Developmental Disabilities provides an overview of People First Language as well as common examples of how the language is used.

People First Language Legislation: A Review Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
People First Language legislation is part of a national movement to promote dignity and inclusion for people with disabilities, and is in many ways a continuation and expansion of the disability rights movement initiated by the federal Americans with Disabilities Act of 1990 and other national legislation. This report includes information on the national movement for respectful language, as well as People First Language legislation contacts and resources by state. (supplied by the Arc of the District of Columbia, Inc.)

People First Language: The Basics Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This pamphlet, created by the Grassroots Committee of Self Advocates Becoming Empowered (SABE), explains the concept of people first language, why it is important, and examples of hurtful versus respectful language. In addition, it provides information on what different States have accomplished or aim to accomplish with regard to respectful language in legislation. (supplied by Self Advocates Becoming Empowered)

Report of the Respectful Language Workgroup
Evaluation Questionnaire for Web Site Resources
As directed in a resolve passed in 2007 by the Maine Legislature, the Maine Developmental Disabilities Council formed a working group to identify words which currently appear in Maine statutes that convey negative and/or derogatory perceptions of people with disabilities, and to make recommendations for replacement terminology to be substituted when new statutory language is crafted to replace and/or add to existing laws. This report includes the findings and recommendations of the workgroup. (supplied by the Maine Developmental Disabilities Council)

Project Brochures and Forms

Commonwealth of Northern Marianna Islands—Family Hope Center Brochure Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
(supplied by CNMI implementation grantee, Family Hope Center)

Consent Form/Consentimiento de Informacion para la Investigacion
Adobe Acrobat Format Adobe Acrobat Document and MS Word FormatMicrosoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a Spanish language consent form. (supplied by implementation grantee, Detroit Family Support 360°)

Dane County Resource Map
Evaluation Questionnaire for Web Site Resources
Wisconsin has developed a resource map of resources in the community they serve. This map is available in English and Spanish. (supplied by implementation grantee, Wisconsin One-Stop Family Support Project).

Detroit 360° Project ChecklistMicrosoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a checklist that can be used by projects to ensure that families have received all of the necessary materials and have been asked all of the relevant questions. (supplied by implementation grantee, Detroit Family Support 360°)

Emergency Authorization Form Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample emergency authorization form for one-stop centers. (supplied by South Dakota implementation grantee, PLANS)

Family Resource Center Brochure Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
The Family Resource Center Brochure provides an overview of Idaho's Family Resource Center. The Family Resource Center is a clearinghouse for information and referral to resources available within the community and throughout the State of Idaho. (supplied by implementation grantee the University of Idaho)

Family Support 360 Brochure Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This brochure is a 2006 Program Profile created by the Administration on Developmental Disabilities (ADD), the funding agency of the Family Support 360 One-Stop Centers. It includes an overview of the initiative, as well as the mission and a success story from each of the 21 grantees. (supplied by ADD)

Family Support 360 Center/Centro de Apoyo Familiar 360 (in English Microsoft Word Document and Spanish Microsoft Word Document)
Evaluation Questionnaire for Web Site Resources
This document was written to inform families and providers of the Basic services that the Oklahoma Family Support 360 Center will be providing. (supplied by implementation grantee, Oklahoma's Family Support 360)

Family Support Network Information Form Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This is a sample three-page intake form for Family Support one-stop centers. (supplied by implementation grantee, Family Support Network of North Carolina)

Individualized Family Plan and Inclusion Definitions and Evaluation Forms in Spanish (in Adobe Acrobat Format Adobe Acrobat Document and MS Word Format Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is an individualized family plan in Spanish. (supplied by implementation grantee, Detroit Family Support 360°)

Intake and Referral Form in Spanish and Inclusion Definitions and Evaluation Forms in Spanish (in Adobe Acrobat Format Adobe Acrobat Document and MS Word Format Microsoft Word Document)
Evaluation Questionnaire for Web Site Resources
This is a sample intake and referral form in Spanish. (supplied by implementation grantee, Detroit Family Support 360°)

Intake Form Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample one-page intake form documenting how the one-stop center can assist families and those with developmental disabilities. (supplied by Utah implementation grantee, Family Support 360: Disability Support Center for Families)

Ladder of Success (in Adobe Acrobat Format Adobe Acrobat Document and MS Word FormatMicrosoft Word Document)
Evaluation Questionnaire for Web Site Resources
This is a ladder of steps for successful project participation. (supplied by implementation grantee, Detroit Family Support 360°)

Maryland—Baltimore Families First Brochure
Available in English Adobe Acrobat Document or Spanish Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
(supplied by Maryland implementation grantee, Maryland's Baltimore Families First)

Massachusetts—SC@N 360° Brochure Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
(supplied by Massachusetts implementation grantee, SC@N 360°)

Memorandum of Understanding Template Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
(supplied by the U.S. Department of State)

Michigan—Detroit Family Support 360° Project Brochure
Evaluation Questionnaire for Web Site Resources
Available in English and Spanish. (supplied by the Michigan Family Support 360 Grantee)

Michigan—Detroit Family Support 360° Project Overview in English
Adobe Acrobat Format Adobe Acrobat Document and MS Power Point Format
Proyecto de Ayuda a Familias de Detroit 360°
Adobe Acrobat Format Adobe Acrobat Document and MS Power Point Format
Evaluation Questionnaire for Web Site Resources
This is a PowerPoint presentation detailing the Detroit Family Support 360° project, including project goals, eligibility, and benefits to the family. (supplied by Michigan implementation grantee, Detroit Family Support 360°)

Michigan—Detroit Family Support 360° Project Poster
Adobe Acrobat Format Adobe Acrobat Document and MS Word FormatMicrosoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a poster advertising the Detroit Family Support 360° project. (supplied by Michigan implementation grantee, Detroit Family Support 360°)

New Hampshire—Under One Roof Project Overview
Evaluation Questionnaire for Web Site Resources
This PowerPoint presentation provides an overview of the New Hampshire 'Under One Roof Project.' (supplied by New Hampshire implementation grantee, Under One Roof Project at The Family Center)

New Mexico—Project Pueblo Connections Brochure
Evaluation Questionnaire for Web Site Resources
(supplied by New Mexico implementation grantee, Project Pueblo Connections)

North Carolina—Family Support Network of North Carolina Brochure
Available in English Adobe Acrobat Documentor Spanish Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
(supplied by North Carolina implementation grantee, Family Support Network of North Carolina)

Oklahoma Individual and Family Support Principles to Practice Indicators in Spanish Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This document identifies actions and self-check questions for families, individuals with disabilities and service providers. These products were developed by the Oklahoma Family Support Partnership, a Project of National Significance in Family Support funded primarily by the US Administration on Developmental Disabilities with contributions from the Oklahoma Department of Human Services, Developmental Disabilities Services Division, and the University of Oklahoma Health Sciences Center. (supplied by implementation grantee, Oklahoma's Family Support 360)

Parent and Youth Completed Screening Tool Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This is a tool for parents and youth to determine in which areas they are in need of information and services. There is a one-page parent screening tool and a one-page youth screening tool.

Request for Payment Form Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a sample payment request form for one-stop centers. (supplied by South Dakota implementation grantee, PLANS)

Request for Payment Instructions Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This form is the instruction information for the 'Request for Payment Form' above. This form gives information to one-stop center employees in administering the form. (supplied by South Dakota implementation grantee, PLANS)

Rhode Island—Paul V. Sherlock Center on Disabilities Brochure Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is the FS 360 Rhode Island grantee's project brochure entitled, "Transition from School to Adult Life." (supplied by Rhode Island implementation grantee, Rhode Island Family Support 360)

Service Plan Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a service plan, which tracks services provided, service goals, funding source, etc. It includes a plan review to administer quarterly. (supplied by South Dakota implementation grantee, PLANS)

South Dakota—PLANS Brochure
Evaluation Questionnaire for Web Site Resources
(supplied by South Dakota implementation grantee, PLANS)

Utah—Disability Support Center for Families Billboard
Evaluation Questionnaire for Web Site Resources
(supplied by Utah implementation grantee, Disability Support Center for Families)

Public Relations/Media

10 Essential Tips to Ensure Your Press Release Makes the News
Evaluation Questionnaire for Web Site Resources
This site provides a brief list of ten important things to remember while writing a press release. There is also an option to sign up for the Press-Release-Writing.com biweekly electronic newsletter that provides free tips on how to write a press release, sample press releases and press release templates. (supplied by Press-Release-Writing.com)

Educating Communities and Legislators: Tips for Family Support 360 Grantees Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document was created in response to a request from the FS 360 People First and Inclusion Workgroup. It is intended to provide suggestions regarding educating communities and leaders. It is not meant to encourage legislative lobbying, which is prohibited as a use of FS 360 grant funds. Herein, education is defined as communicating data, reports, program descriptions, effects on population, and other information that does not recommend action on pending legislation, appropriations, regulations, or policy decisions.

Generic Marketing Plan Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This is a checklist for developing a marketing plan. (supplied by Full Circle Associates)

Grantee Billboard Advertisement Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
The Oregon Family Support 360 grantee, Juntos Podemos (Together We Can), has acquired a billboard to promote its One-Stop Center services and contact information. This billboard was the only bilingual billboard selected to receive the donation of digital billboard promotion. This message currently runs on five digital boards in four locations. It will run approximately 1700 times every 24 hours for 30 days. This is an image of the sign. (supplied by Juntos Podemos)

Grantee Commercial
Evaluation Questionnaire for Web Site Resources
This commercial is for the Family Hope Center, the Central Northern Mariana Islands Family Support 360 grantee. (supplied by the Family Hope Center)

Grantee Promotional Materials
Evaluation Questionnaire for Web Site Resources
The Maryland Family Support 360 grantee uses logo-imprinted materials, such as pens and filing briefcases, to promote its center. The grantee uses 4imprint.com for most promotional items and Richwell Industries Inc. for the briefcases. (supplied by The Family League of Baltimore City)

How to Write a Press Release
Evaluation Questionnaire for Web Site Resources
A press release, also known as a news release, is a written statement distributed to the media. These releases can announce a range of news items, including available services and scheduled events. They can also be used in generating a feature story. Reporters are more likely to consider a story idea if they first receive a release. This site provides seven steps to creating a press release, as well as tips and warnings. (supplied by wikiHow)

Image Campaign
Evaluation Questionnaire for Web Site Resources
The Arc of Colorado, in partnership with Denver advertising agency, Sukle Advertising and Design, has launched an exciting new Image Campaign. The Image Campaign displays the abilities and ordinary desires of people with developmental disabilities through photo images with innovative catchphrases. (supplied by, The Arc)

Media Advocacy Toolkit
This toolkit was developed to aid organizations in generating media around their one-stop center or a particular event or happening in the community.

Strategic Communications Plan GeneratorMicrosoft Word Document
Evaluation Questionnaire for Web Site Resources
This document will assist grantees in developing a strategic communications plan for their one-stop center. It is a step-by-step plan that walks you through the process. This was adapted from the SPIN Project (www.spinproject.org).

Research, Evaluation, and Statistics

Annual Disability Statistics Compendium: 2009
Evaluation Questionnaire for Web Site Resources
This compendium is the first of what is intended to be an annual publication of statistics on people with disabilities and government programs that serve the population with disabilities. Data include statistics from federal sources and surveys on disability prevalence and population size, including break-downs by state and type of disability, employment and earnings, education, health and health care, rehabilitation, and participation in benefit programs. This report is a product of the Rehabilitation Research and Training Center on Disability Statistics and Demographics, which is funded by the National Institute on Disability and Rehabilitation Research.

Atlas: Global Resources for Persons with Intellectual Disabilities
Evaluation Questionnaire for Web Site Resources
The World Health Organization and the Montreal PAHO/WHO Collaborating Centre for Research and Training in Mental Health have developed Atlas ID. This report presents information from 147 countries, including terms and classification systems, policy and legislation, health and social care services, human resources and training, and roles of NGOs and international organizations. Also included are a complete glossary of ID terms and the questionnaire used to collect data. (supplied by the 2nd International Conference on Intellectual Disabilities/Mental Retardation

Data Resource Center for Child and Adolescent Health
Evaluation Questionnaire for Web Site Resources
The Data Resource Center for Child & Adolescent Health Web Site provides access to survey data from the National Survey of Children’s Health and the National Survey of Children with Special Health Care Needs (CSHCN) and allows users to:

  • Search and compare national, state or regional prevalence estimates
  • Look for national, state or regional results on key indicators and MCHB outcomes
  • Compare findings for CSHCN from different age, race, income, or health status groups
  • Compare results for your state, the nation, or subgroups of children
  • View state and regional profiles on key measures
  • Explore survey content relevant to Healthy People 2010

Family Support in Children’s Mental Health: A Review and Synthesis
Evaluation Questionnaire for Web Site Resources
This is a comprehensive review of structured family support programs in children’s mental health that was conducted in collaboration with leadership from key national family organizations. The goals were to identify typologies of family support services for which evaluation data existed and identify research gaps. Programs were categorized by whether they were delivered by peer family members, clinicians, or teams. Five salient components of family support were identified: (a) informational, (b) instructional, (c) emotional, (d) instrumental, and (e) advocacy. (supplied by SpringerLink)

Highlights in Developmental Disability Spending from the State of the States Study
Evaluation Questionnaire for Web Site Resources
This page provides highlights by researcher David L. Braddock, taken from his latest State of the States in Developmental Disabilities study, a book that tracks developmental disability spending in the United States. (supplied by the American Association on Intellectual and Developmental Disabilities)

National Healthcare Quality & Disparities Reports: 2009
Evaluation Questionnaire for Web Site Resources
The Agency for Healthcare Research and Quality has produced the 2009 National Healthcare Quality Report and the 2009 National Healthcare Disparities Report. These reports measure trends in effectiveness of care, patient safety, timeliness of care, patient centeredness, and efficiency of care. The reports present, in chart form, the latest available findings on quality of and access to health care. (supplied by the Agency for Healthcare Research and Quality)

Native American and Alaska Native Population U.S. Census Data
Census Map Adobe Acrobat Document
Census Data Table
Evaluation Questionnaire for Web Site Resources
This map, created from 2000 U.S. Census data, depicts the distribution of those who self-identify as exactly one race, American Indian and Alaska Native. The main map shows this distribution by county, while the inset map shows it by state. (supplied by the U.S. Census Bureau)

U.S. Census Bureau Disability Reports and Statistics
Evaluation Questionnaire for Web Site Resources
This section of the U.S. Census Bureau Web site provides reports, briefs, research papers, microdata, and a disability data mailing list. The latest reports include:

  • Americans with Disabilities: 2005
  • Disability Status and the Characteristics of People in Group Quarters
  • 2006 Data for 6 Broad Disability Categories (from the American Community Survey)
(supplied by the U.S. Census Bureau)

Disability and Health State Chartbook
Evaluation Questionnaire for Web Site Resources
This Chartbook is the first in a series to present information about the health of people with disabilities by state and territory. It has three purposes: 1) to show that a large percentage of adults have a disability, 2) to show that the health of people with disabilities is not as good as that of the people without disabilities, and 3) to highlight areas in which public health systems can include more people with disabilities in their programs. (supplied by the Centers for Disease Control and Prevention)

Facts for Features: Americans with Disabilities Act Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
The U.S. Census Bureau released the Americans with Disabilities Act (ADA) Facts for Features, which contains facts to be used for publications for the anniversary of the ADA. The categories include population distribution, specific disabilities, on the job, income and poverty, and education. These facts were drawn from the Americans with Disabilities: 2002 Census Bureau report. (supplied by the U.S. Census Bureau)

Interactive Autism Network
Evaluation Questionnaire for Web Site Resources
The Interactive Autism Network (IAN) is an innovative online project designed to accelerate the pace of autism research by linking researchers and families. Anyone impacted by an Autism Spectrum Disorder (ASD) can become part of IAN's online community to stay informed about autism research, provide feedback, and make their voices heard. In addition, families of children with an ASD can share information in a secure online setting and become part of the nation's largest online research effort. As a result, researchers will obtain valuable data, explain findings, and collaborate with families and one another. This dynamic exchange could lead to new discoveries about causes, diagnosis, treatments, and a possible cure for this puzzling group of disorders.

Keeping Track: National Disability Status and Program Performance Indicators
Evaluation Questionnaire for Web Site Resources
This report proposes a set of statistical indicators to annually measure the status of working-age people with disabilities and compare them to working-age people without disabilities in the U.S. This report focuses on the working-age population because many federal programs focus on employment, making indicators for this population particularly relevant. Additionally, the life circumstances of working-age people with disabilities differ enough from the circumstances of children, youth and seniors, that separate indicators are warranted. The topical indicator set, which can be produced relatively quickly, can provide a foundation for the social indicator systems being developed, and stimulate public awareness about the status of people with disabilities and the need for improvement. (supplied by the National Council on Disability)

Left Out in the Cold: Health Care Experiences of Adults with Intellectual and Developmental Disabilities in Massachusetts Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
The purpose of this study conducted by The Arc of Massachusetts’ Health Care Project was to assess the quality of health care services received by adults with intellectual disabilities and/or developmental disabilities in Massachusetts. This report includes project methods, findings, and researcher recommendations from the study conducted in 2008. (supplied by The Arc of Massachusetts)

Massachusetts C-PASS M&O Subcommittee Consumer Forum Series Report
Report Microsoft Word Document
Appendix 1 Microsoft Word Document
Appendix 2 Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
The Massachusetts Community-Integrated Personal Assistance Services and Supports (C-PASS) Marketing & Outreach Subcommittee (M&O) created a Consumer Forum Series to gather information on barriers to self-direction and community integration from a community perspective. Aside from targeting elders, individuals with disabilities and their families, emphasis was placed on targeting traditionally underserved and un-served racial, ethnic, and linguistic minority groups and rural areas. This report is the narrative account and outcomes from nine consumer forums.

Rural Communities

Assessing the Barriers to Community Living: Accessible Housing in a Rural State Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This statewide community-based participatory action research study was conducted to identify opportunities and barriers for persons with disabilities in obtaining accessible, affordable housing in West Virginia. Using surveys and a facilitated group technique, persons with disabilities identified existing barriers and developed a set of questions for housing industry professionals. This article was published in "Housing and Society" the journal of the Housing Education and Research Association.

The Rural Assistance Center Website
Evaluation Questionnaire for Web Site Resources
This website provides health and human services information to assist rural Americans. They also operate a call center to provide customized assistance to organizations or individuals seeking to maintain and improve health and human services delivery in rural areas.

Self-Advocacy

My Health, My Choice, My Responsibility: Training Program
Evaluation Questionnaire for Web Site Resources
My Health, My Choice, My Responsibility is an 8-week training program written to promote health advocacy among adults with developmental disabilities. Each of its eight sessions covers a health area and focuses on making healthy decisions on a daily basis. The program includes three health tools: My Medical Appointment, a form to help prepare for medical appointments; Health Information Form, a record of health needs and medical history; and My Health Plan, a listing of goals developed during the seminar. (supplied by the Westchester Institute for Human Development)

The Riot! Disability Pride Issue
Miscrosoft Word Microsoft Word Document | Adobe PDF Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
The Riot! is an e-newsletter for self-advocates, produced by the Self-Advocate Leadership Network at the Human Services Research Institute. This issue celebrates the publication's five-year anniversary and is dedicated to disability pride.

Staff Retention and Training

CMS Direct Service Workforce Demonstration Promising Practices in Marketing, Recruitment and Selection Interventions Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
The Centers for Medicare and Medicaid Services (CMS) initiated a demonstration project to improve the Direct Service Community Workforce to test the effectiveness of different workforce interventions on the retention and recruitment of Direct Service Workers (DSWs). This report identifies promising practices in direct service worker marketing, recruitment, and selection across the CMS grantees. (supplied by the HCBS Clearinghouse for Community Living Exchange Collaborative)

National Training Institute For Frontline Supervisors and Technical Assistance Project
Evaluation Questionnaire for Web Site Resources
The National Training Institute For Frontline Supervisors and Technical Assistance Project (NTIFFS) is a three year grant program designed to improve recruitment and retention across the country of Direct Support Professionals, who are competent and confident in the skills needed to provide quality supports and services to individuals with developmental and other disabilities. This site includes the Final Report from the project.

Online Learning Center
Evaluation Questionnaire for Web Site Resources
This site provides online courses on a wide variety of topics designed specifically to help strengthen national service programs. The courses are available free of charge. Course topics range from financial management to disaster services, from tutor training to disability inclusion. (supplied by The Resource Center)

Opportunity Partnership & Empowerment Network: A Case Study of an Effective Employee Retention Project
Evaluation Questionnaire for Web Site Resources
This case study report aims to bring attention to an innovative approach to improving retention of entry-level workers in health care and, more specifically, direct-care workers in the long-term care industry. The study explains how the Health Field Collaborative in Michigan created the Opportunity Partnership & Empowerment Network (OPEN) to successfully address a critical local need. It also outlines the basic components of the OPEN program, reviews the outcomes for the program’s pilot phase, and identifies critical factors for sustaining the program in the future. (supplied by the HCBS Clearinghouse for the Community Living Exchange Collaborative)

Workforce and Status Outcomes Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This assessment, developed by the University of Minnesota's Research and Training Center on Community Living, can help agencies and programs generate and understand employee metrics related to retention, pay, services rendered, and marketing expenditures. The formulas provided can help identify strengths and challenges of the workforce structures. (supplied by the Research and Training Center on Community Living)

Strategic Storytelling

Sharing Your Story: A Checklist for Families Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document, developed for the FS 360 Strategic Storytelling Workgroup and intended for use by all 360 grantees, provides a plain language checklist of things for families to think about when sharing their personal stories. (Adapted from 'Words of Advice: A Guidebook for Families Serving As Advisors' from the Institute for Family-Centered Care)

Strategic Storytelling Before & After Story Samples
Evaluation Questionnaire for Web Site Resources
This document contains three original stories written by members of the FS 360 Strategic Storytelling Workgroup. The stories were reviewed during workgroup meetings, and later rewritten to incorporate suggested revisions. This document contains the original stories, tracked changes that show what suggestions and comments were given during review, and the final versions of the stories.

Strategic Storytelling Tips Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document, created for the FS 360 Strategic Storytelling Workgroup and intended for use by all 360 grantees, provides a list of basic tips for storytelling, as well as the five major storytelling steps and specific tips for each.

Stress and Time Management

MindTools.com: Stress Management Modules
Evaluation Questionnaire for Web Site Resources
MindTools.com's mission is "to help people around the world learn the simple, practical skills needed to excel in their careers." To deliver this, they strive to offer authoritative, well-researched, easily-understood information presented in a format that is highly accessible for all their visitors. They work hard to ensure that their materials are simply expressed and presented, so that they can easily be understood by people for whom English is a second language. Modules provide self-help and support to overcome stress in a range of situations (Links provided will take you to the MindTools.com Web Site):

Understanding Stress Modules:

  • Understanding Stress: Anticipate and prepare for stressful conditions and develop the techniques you need to manage each and every situation.
  • What Causes Stress: Identify the short and long-term pressures that affect you and develop the techniques you need to live a less stressful life.

Stress At Work Modules:

  • Work Overload: Stress and hard work can be sold as the price of success. Develop the mindset and skills you need to manage your workload.
  • Problem Jobs: Redefining tough jobs, getting the support your work deserves and taking charge of your career in today’s changing workplace.
  • Problem People: Powerful people, such as you boss, can support or undermine you, and working as a team can be a powerful way of getting things done. Deal with unreasonable demands, create a successful team and ensure your needs are respected.
  • Your Work Environment: The frustrations of commuting. Badly organized work spaces. The techniques you need to create a more positive environment.

Stress Defense Modules:

  • Building Your Defenses: Develop a lifestyle that reduces background levels of stress and allows you to live life to the full.
  • Manage Performance Stress: The skills you need at your disposal every time you need to succeed under stress.
  • Think Stress Away: How we react to stress can have a profound effect on how stressful they become. Overcome negative thinking.
  • Avoiding Burnout: Your job is challenging – and stressful. How to remain passionate and committed by avoiding or recovering from burnout.
  • Relaxation Techniques: Simple techniques for relaxing and dealing with the unpleasant symptoms of stress.

Ten Keys to Time Management Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This document, from CoachVille, describes ten ways to manage your time, starting with recognizing that you are not effectively managing your time.

Sustainability

ADRC Profiles in Sustainability Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This report, based on sustainability case studies in six Aging and Disability Resource Centers across the United States, aims to better understand sustainability approaches and results. The six states in the study were chosen because they exhibited different model types and represented a range of service delivery strategies and initiatives, as well as organizational and programmatic settings. (supplied by the Aging and Disability Resource Center Technical Assistance Exchange)

Endowment for Health 2008 Sustainability News Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This newsletter from the largest health foundation in New Hampshire focuses on sustainability, including sections on strategies, models, resources, and reports. The information included is valuable for grantees nationwide. (supplied by the Endowment for Health)

Family Support 360 Sustainability Presentation at AUCD Conference
Evaluation Questionnaire for Web Site Resources
Five Family Support 360 grantees presented at the AUCD conference in Washington, DC on November 12, 2007. This is the PowerPoint from that presentation, which focuses on three potential strategies for sustainability: assimilation, natural/informal support, and new funding.

Impact and Value: Telling Your Program's Story
Evaluation Questionnaire for Web Site Resources
The purpose of this workbook is to help public health program administrators understand what a “success story” is, why it is important to tell success stories, and how to develop success stories. This document is intended to be used by program managers/coordinators in order to provide steps they can use to systematically collect and create success stories that highlight their program achievements. Developing success stories can assist with sustainability efforts. (supplied by the Centers for Disease Control and Prevention)

Is Sustainability Possible? A Review and Commentary on Empirical Studies of Program Sustainability Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This review and synthesis of 19 empirical studies of the sustainability of American and Canadian health-related programs examines the extent of sustainability achieved and summarizes factors contributing to greater sustainability. (supplied by the Aging and Disability Resource Center Technical Assistance Exchange)

Sustaining Grassroots Community-Based Programs: A Toolkit for Community- and Faith-Based Service Providers
Evaluation Questionnaire for Web Site Resources
This ToolKit is designed to help grassroot community- and faith-based organizations develop program services. It contains six separate books: Introduction, Organizational Assessment and Readiness, Effective Marketing Strategies, Financial Management, Sustainability Strategies, and Results-Oriented Evaluation (supplied by SAMHSA's National Clearinghouse for Alcohol and Drug Information)

Using a Fundraising Consultant Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
These frequently asked questions about using a fundraising consultant were written and answered by Ruthellen Rubin, a Certified Fund Raising Executive for the nonprofit sector. This document includes a different ways to utilize a fundraising consultant as well as consultant "dos and don'ts." (supplied by DevelopNP.com)

Trainings and Manuals

ADA Basic Building Blocks Online Course
Evaluation Questionnaire for Web Site Resources
This is a free introductory Webcourse on the Americans with Disabilities Act of 1990 (ADA) that explores the legal requirements and spirit of the ADA. (supplied by the DBTAC National Network of ADA Centers)

Army Family Team Building E-Learning
Evaluation Questionnaire for Web Site Resources
Army Family Team Building is a volunteer-led organization whose mission is to provide training and knowledge to military family members. Level I training is intended for families new to the military, but may also be helpful to FS 360 Navigators. Level I topics include acronyms and terms; the military chain of command; military customs and courtesies, basic benefits and entitlements, and an introduction to military and civilian community resources. (supplied by Army OneSource)

Family Support, Self-Determination, and Disability Curriculum
Evaluation Questionnaire for Web Site Resources
This family-developed, participatory curriculum offers six modules, including a philosophy of family support; cultural competence awareness; needs assessment and supports plans; resources identification and coordination; skills for working collaboratively with families; and an evaluation of the effectiveness of family support services. The curriculum was developed as a Training Initiative Project from ADD; it has been offered extensively in Vermont, and in 20 other States and territories. (supplied by Vermont implementation grantee, Green Mountain Family Support 360)

Individualized Interagency Intervention Plan (IIIP) Guidebook Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This guidebook was developed to provide assistance, guidance, and direction for the development of an IIIP to address the needs and concerns of children, youth, and young adults with disabilities and their families. The Guidebook includes: an IIIP framework, guidelines for the use of IIIP, samples of IIIP forms, and other valuable information. (supplied by implementation grantee the Minnesota Governor's Council on Developmental Disabilities)

Microboard Manual Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document is a manual that describes how to establish a Microboard in the state of Colorado. A Microboard is an agency created by family members or guardians, incorporated to do business in the State of Colorado, whose scope is solely to provide comprehensive services to one person with a developmental disability. Also available is a document that contains sample Microboard Bylaws and a document that describes sample Microboard Policies and Procedures. (supplied by implementation grantee, Colorado Family Support 360)

PACER Center Webinars
Evaluation Questionnaire for Web Site Resources
These free, archived Webinars examine helpful topics such as using digital books to help struggling readers, early childhood intervention, and serving culturally diverse families. (supplied by the PACER Center)

Parent Training Modules
Evaluation Questionnaire for Web Site Resources
This six-module parent training helps families promote children’s social and emotional skills, understand problem behaviors, and use positive approaches to help children learn appropriate behaviors. There is also an accompanying family workbook, as well as a facilitator's guide for professionals providing the training. (supplied by the Center on the Social and Emotional Foundations for Early Learning)

Partners in Education Self-Study Course
Evaluation Questionnaire for Web Site Resources
This self-study course designed to help parents of children with developmental disabilities navigate the special education system and help their children make the most of their potential. (supplied by the Minnesota Governor's Council on Developmental Disabilities).

Partners in Living Self-Study Course
Evaluation Questionnaire for Web Site Resources
This self-study course is designed to help people with developmental disabilities, their families and friends explore four important elements that, together, can help them create a meaningful life: self-determination, family support, community living and assistive technology. (supplied by the Minnesota Governor's Council on Developmental Disabilities).

Picture Planning Overview
Evaluation Questionnaire for Web Site Resources
This series of PowerPoint presentations offers an overview to picture planning for families. Picture planning helps teams move from paper-driven discussion to images which depict real-life situations. Families can respond to the images on an equal footing with professionals. The link above will lead you to the series of PowerPoint presentations as well as a picture planning workbook for families. (supplied by planning grantee, North Dakota Family Support One-Stop)

Special Needs Planning Considerations for Service and Support Providers
Evaluation Questionnaire for Web Site Resources
The purpose of this online course is to provide representatives of the special needs service and support system with the basic information and tools to develop their own emergency plans. This course is designed for people who work with individuals with disabilities and people who are aging, and will teach how to partner with local Emergency Management and better prepare for all phases of an emergency. This course is free of charge and takes approximately 4.5 hours to complete. (supplied by the Emergency Management Institute)

Supporting American Indian Families of Children With Special Needs in North Dakota Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This resource was developed for family support providers with several purposes in mind. The intent of this manual is to provide a positive and realistic picture of both the strengths and the challenges faced by American Indian families of children with disabilities living in reservation communities; to provide information about potential partners who live or work in reservation communities and are working to develop systems and resources needed to provide support to American Indian families of children with special needs; and to present resources and strategies that members of the reservation community have learned will strengthen relationships and assist them to build new systems of support. (supplied by planning grantee, North Dakota Family Support One-Stop)

Traumatic Brain Injury Web-Based Training Site Adobe Acrobat Document
Michigan's Department of Community Health, with funding from HRSA's Federal Traumatic Brain Injury Program (TBI) has produced and developed this new TBI Web-based training site entitled, "Traumatic Brain Injury & Public Services in Michigan." People from States other than Michigan can access the information provided. The goal of the site is to educate community agency staff about the needs and issues specific to individuals with TBI.

Technology

Assistive Technology Fact Sheets
This series of fact sheets from the Family Center on Technology and Disability provide basic information on a variety of topics related to assistive technology. Current fact sheets include: Assistive Technology Glossary; Assistive Technology 101; Assistive Technology and the IEP; Assistive Technology Laws. (supplied by the Family Center on Technology and Disability)

Assistive Technology for Infants and ToddlersAdobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This 4-page brief answers some common questions parents may have about Assistive Technology. It defines Assistive Technology under the Department of Education’s Individuals with Disabilities Education Act and addresses how parents can get an AT evaluation and who pays for it. (supplied by the National Information Center for Children and Youth with Disabilities)

Assistive Technology Technical Assistance State Contact List
Programs are funded in 56 states and territories under the Assistive Technology Act of 1998, as amended. These programs work to improve the provision of assistive technology to individuals with disabilities of all ages through comprehensive statewide programs of technology-related assistance. Additionally, the programs support activities designed to maximize the ability to access and obtain assistive technology devices and services. (supplied by the Rehabilitation Engineering and Assistive Technology Society of North America)

Augmenting Workplace PAS Through the Use of Assistive Technology Vol. 4 - Fact Sheet Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
Many employees with significant disabilities know the importance of balancing Assistive Technology (AT) and Workplace Personal Assistance Services (WPAS) as employment accommodations. Unfortunately, employees who need both accommodations are fearful that potential employers will consider the request for both accommodations unreasonable. Employers who do not fully understand the need for these employees to have both accommodations might agree. It is important for the employee to explain why both supports are needed to maximize efficiency. To justify the need for both accommodations, the employee should become very knowledgeable about workplace AT and workplace PAS. This fact sheet provides guidance on understanding and using AT and WPAS in the workplace, including scenarios on how to request both as employment accommodations. (supplied by the Virginia Commonwealth University Rehabilitation Research and Training Center on Workplace Supports and Job Retention)

Compendium of Home Modification and Assistive Technology Policy and Practice Across the States
Evaluation Questionnaire for Web Site Resources
The purpose of this compendium is to establish baseline knowledge of the scope of assistive technology and home modification services that states make available to Medicaid-eligible adults. This study provides federal and state policymakers with basic information to inform planning and policy development. It also provides other stakeholders, including consumers, with valuable information about Medicaid State Plan and HCBS waiver. State Profiles are available as a supplement to the report. (supplied by the U.S. Department of Health and Human Services)

Developing Web Sites for Users Who Are Older and/or Have a DisabilityAdobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This issue brief, developed by the Lewin Group for the Aging and Disability Resource Centers (ADRC), shares specific ideas and strategies for making Web sites informative and useful for people with disabilities and/or those who are older. (supplied by the Aging and Disability Resource Centers Technical Assistance Exchange)

Family Friendly Information and Web Sites Online Resource List Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This document provides a list of online resources for those wishing to develop family friendly Web sites. (supplied by planning grantee, Ohio Legal Rights Service)

How to Evaluate and Select Assistive Technology Devices
Evaluation Questionnaire for Web Site Resources
This document is a fact sheet and checklist developed to help individuals and their families make informed decisions on evaluating assistive technology devices. (supplied by The Arc)

The Library of Congress National Library Service for the Blind and Physically Handicapped
Evaluation Questionnaire for Web Site Resources
Through a national network of cooperating libraries, the National Library Service for the Blind and Physically Handicapped (NLS) administers a free library program of braille and audio materials circulated to eligible persons who are unable to use standard printed material because of visual or physical disabilities in the United States by postage-free mail. Library patrons can expect to borrow audio or braille books such as they might find in print at a local public library, including a collection of music scores and instrumental instructional materials in braille and audio format. Books and magazines in audio form (talking books) and braille are delivered to eligible readers by postage-free mail and are returned in the same manner. Specially designed phonographs and cassette players are also loaned free to persons who borrow talking books from their library.

Oklahoma's Eligibility Wizard
Evaluation Questionnaire for Web Site Resources
The Eligibility Wizard is a collaborative effort of several agencies in Oklahoma including the Oklahoma Department of Human Services, Oklahoma Healthcare Authority, and several others. (supplied by Oklahoma implementation grantee, Family Support 360 Center)

Online Meeting Technology and Vendors Microsoft Word Document
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This document explains the various online meeting technologies such as Webcasts, Webinars, and conference calls with associated Web support. This document also contains tips on how to choose a vendor for these activities.

Online Screening and ApplicationsAdobe Acrobat Document
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This issue brief, developed by the Lewin Group for the Aging and Disability Resource Centers (ADRC), highlights some of the key considerations in states moving toward online applications. (supplied by the Aging and Disability Resource Centers Technical Assistance Exchange)

Overview of the Web Content Accessibility Guidelines (WCAG) 1.0 Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This document contains 14 guidelines for those developing family friendly Web sites. Each guideline contains between one and ten checkpoints in order to conform to the guideline. Cross-references are provided in order to provide further clarity to the meaning of each checkpoint and to offer techniques to achieve each checkpoint. (supplied by planning grantee, Ohio Legal Rights Service)

Microsoft Accessibility
Evaluation Questionnaire for Web Site Resources
This Microsoft website provides information about accessibility settings and assistive technology for products, guides to accessibility by type of impairment, tutorials for accessibility in Microsoft products, case studies and articles, and many other related resources.

Microsoft - DAISY Consortium Collaboration
Microsoft and Daisy will make Word speak
Evaluation Questionnaire for Web Site Resources
Microsoft, the personal computer and software giant, has teamed up with Daisy, creator of digital talking books, to create a talking version of Word 2003 and 2007. These programs are designed to assist people with disabilities better use the popular word processing applications. Both articles explain the collaboration. (supplied by the Daisy Consortium and ZDNet)

Section 508 of the Rehabilitation Act — Summary of Web Site Requirements Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
This document helps to clarify Section 1194.22 of subpart B of Section 508 of the Rehabilitation Act, which addresses Web-based Intranet and Internet information and applications, focusing on the scope and coverage of the standards. (supplied by planning grantee, Ohio Legal Rights Service)

Universal Application System Pamphlet Adobe Acrobat Document
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This pamphlet provides an overview of the Universal Application System Web-based application process designed for Utah families who have young children with special needs. This system allows families to complete applications online for a variety of Utah programs and community resources. (supplied by implementation grantee the Center for Persons with Disabilities, Utah State University)

Wisconsin's Functional Screen
Evaluation Questionnaire for Web Site Resources
Wisconsin's Functional Screen system is a Web-based application used to collect information about an individual's functional status, health, and need for assistance for various programs that serve people with developmental or physical disabilities. The screen is used to determine functional eligibility for certain mental health services, adult long-term care programs, and children's long-term support programs. (supplied by the Wisconsin Family Support 360 Project)

Working Together: People with Disabilities and Computer Technology Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
Technology is helping to lower many barriers for people with disabilities. Students and employees with disabilities are capable of handling a wider range of activities independently. Still, people with disabilities face a variety of barriers to computer use. These barriers can be grouped into three functional categories: barriers to providing computer input, interpreting output, and reading supporting documentation. Hardware and software tools (known as adaptive or assistive technologies) have been developed to provide functional alternatives to these standard operations. This article describes specific technology products and approaches to using them.

Transition

Family Information Guide to Assistive Technology and Transition
Evaluation Questionnaire for Web Site Resources
This guide includes an introduction to transition planning and assistive technology (AT), tips for making a successful transition with AT, a description of laws governing accommodations and transition, a glossary of AT and transition terms, and additional AT and transition resources. (supplied by the Family Center on Disability and Technology)

Life After High School Transition Tool Kit
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This tool kit is designed to help families and youth learn about the transition planning process for youth who have an Individualized Education Program (IEP). It provides an overview of the laws relating to transition as well as best practices. The information in this tool kit will help families and youth better collaborate with schools to create purposeful and meaningful transition plans and IEPs. (supplied by the Parent Information Center on Special Education)

Transition Planning: Setting Lifelong Goals
Evaluation Questionnaire for Web Site Resources
This is an article for parents of high school students provides information on transition and links to related resources. It also offers a 2004 IDEA checklist and transition planning checklist to help children make successful transitions from school to employment or further education. (supplied by Wrightslaw)

Transportation

ADA Information Line
Evaluation Questionnaire for Web Site Resources
The U.S. Department of Justice provides information about the Americans with Disabilities Act (ADA) through a toll-free ADA Information Line. This service permits businesses, State and local governments, or others to call and ask questions about general or specific ADA requirements including questions about the ADA Standards for Accessible Design. ADA specialists are available Monday through Friday from 9:30 AM until 5:30 PM (Eastern Time) except on Thursday when the hours are 12:30 PM until 5:30 PM. Spanish language service is also available. For general ADA information, answers to specific technical questions, free ADA materials, or information about filing a complaint, call: (800)514-0301 (voice) or (800)514-0383 (TTY).

ADA Paratransit Eligibility: How to Make Your Case Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
The purpose of this handout is to assist people with disabilities to obtain an accurate and fair Americans with Disabilities Act (ADA) paratransit eligibility determination. Many people with disabilities who should be eligible for paratransit services according to the ADA are denied eligibility because transit agencies are not accurately assessing their capacities. People with disabilities can affect this process, in many cases, by carefully documenting their disabling conditions, ensuring all their disability-related impairments are assessed, and taking other steps described in this document. (supplied by the Disability Rights Education & Defense Fund)

Americans with Disabilities Act and Transportation Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document, drafted by the ADA & IT Technical Assistance Centers, is part of a series devoted to increasing the understanding and awareness of the transportation provisions of the Americans with Disabilities Act (ADA). It includes definitions, transportation systems covered and not covered by the ADA, ADA requirements, and contact information.

Building an Individual Transportation Plan Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document describes the role of transportation in education, employment, health and human services; policies that impact local transportation in a community; and individual and family concerns. Also included are two templates, the first contains a series of discussion questions for people to consider when developing an individual transportation plan, and the second is an Individual Transportation Plan Template. (supplied by United We Ride)

Buses and Trains for Everyone Curriculum
Evaluation Questionnaire for Web Site Resources
Buses and Trains for Everyone curriculum is developed with support from Easter Seals Project ACTION to teach concepts and skills needed to use public transportation. Buses and Trains for Everyone is targeted to children grades K-8 and teaches safety, travel etiquette, manners, and life and problem-solving skills. The curriculum includes alternative assessment standards for children with severe disabilities.
(Easter Seals Project ACTION)

Transportation Information Station
Evaluation Questionnaire for Web Site Resources
The Information Station connects you with important community transportation news, resources and ideas. It is intended to help transit professionals seeking specialized information, human services agencies searching for transportation options, or anyone just beginning to explore mobility issues in the community. The Information Station provides categorical guides, a glossary of terms, online publications, links to related websites and a powerful search engine. (supplied by Community Transportation Association of America)

Coordinated Transportation Fact Sheet Adobe Acrobat Document
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This document, from United We Ride Puget Sound, gives a basic overview of coordinated transportation. (supplied by United We Ride)

FTA Toll-Free Assistance Line
Evaluation Questionnaire for Web Site Resources
If you have any questions or concerns regarding public transportation for persons with disabilities, please contact the Federal Transit Administration (FTA) Office of Civil Rights on their toll-free Americans with Disabilities Act (ADA) Assistance Line at 1-888-446-4511 or by e-mail at FTA.ADAAssistance@dot.gov. Please leave a message, and your questions or concerns will be addressed by a member of the FTA ADA Team. If you require specific technical assistance, your call will be directed to the appropriate FTA program office.

Mobility Management Adobe Acrobat Document
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This document, from United We Ride Puget Sound, offers several approaches that community leaders can implement to help communities provide more mobility, more efficiently. It also describes several transportation programs that have been implemented in the Puget Sound area, including estimated costs and contact information. (supplied by United We Ride)

New Freedom Program Update
Adobe PDF Adobe Acrobat Document or Microsoft Word Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
The Government Accountability Office (GAO) has released detailed briefing slides from a presentation on the New Freedom Program. The GAO examined the extent to which the Federal Transit Administration (FTA) has implemented the program and how FTA monitors program performance. The New Freedom Program is designed to support new public transportation services and alternatives beyond those required by the ADA. This document reviews the progress, developing policies and procedures of the New Freedom Project.

One Vision. One Call.
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This page provides information on the United We Ride One Vision. One Call. Program. The goal of the program is to make life easier for riders by helping those who schedule rides to build a more streamlined, unified transportation system. (supplied by United We Ride)

Safe Accountable Flexible Efficient Transportation Equity Act: A Legacy for Users
Evaluation Questionnaire for Web Site Resources
The Safe Accountable Flexible Efficient Transportation Equity Act: A Legacy for Users (SAFETEA-LU) includes three human service transportation programs administered by the Federal Transit Administration (FTA) - Elderly Individuals and Individuals with Disabilities; Job Access and Reverse Commute; and New Freedom. These three federal programs provide formula funding for States and communities and are targeted to enhance transportation services for specific populations that depend on alternative transportation options for their day-to-day mobility. FTA has also published a Federal Register Notice outlining the responses to comments submitted regarding an earlier proposed notice.

State-by-State Guide to Transportation Assistance
MS Word Microsoft Word Document Adobe PDF Adobe Acrobat Document
Evaluation Questionnaire for Web Site Resources
Access to transportation impacts individuals' quality of life, and without it, the ability to live independently is jeopardized. More than 6,000 transit systems nationwide provide some form of service to older riders, from reduced fares to expanded use of low-floor vehicles to personalized training sessions to help older riders navigate their communities. Transportation assistance is not always well advertised or organized into comprehensive directories. AARP Bulletin has compiled a state-by-state list of local transportation options to help individuals quickly access transportation in their communities. (supplied by AARP Bulletin today)

Transportation-Disadvantaged Populations: Some Coordination Efforts Among Programs Providing Transportation Services, but Obstacles Persist
Evaluation Questionnaire for Web Site Resources
Various federal programs are authorized to provide transportation services to transportation-disadvantages populations. This report identifies the federal programs that fund such transportation services and the amount spent on them, assesses the extent of coordination among the various programs, and identifies any obstacles to coordination and potential ways to overcome such obstacles. (supplied by the U.S. General Accounting Office)

United We Ride Information Sheet Microsoft Word Document
Evaluation Questionnaire for Web Site Resources
This document provides an overview of the United We Ride Federal initiative that supports developing coordinated human service delivery systems. It includes a description of the program, information on how to become involved in state and community efforts, and contact information. (supplied by United We Ride)

Victimization and Maltreatment

A Call to Action: Ending Crimes of Violence Against Children and Adults with Disabilities
A Report to the Nation
Adobe PDF | HTML Text
Evaluation Questionnaire for Web Site Resources
This report introduces the reader to the topic of violence and disability, its definitions, and the reasons for the increased interest in the problem. Additionally, it reviews the major questions about the problem of violence and disability, and addresses the question: Who is responsible for ending crimes of violence against children and adults with disabilities? (supplied by Upstate Medical Center's Department of Physical Medicine and Rehabilitation)

Maltreatment of Vulnerable Adults and Children: College of Direct Support Course
Evaluation Questionnaire for Web Site Resources
This course helps the learner understand what abuse, neglect, and exploitation are; how to identify suspected cases of abuse, neglect or exploitation; how to protect the person who may have been harmed from further exploitation; and how to effectively document these situations. This course teaches learners about specific reasons people with disabilities may be more vulnerable to abuse, neglect, or exploitation and what strategies they can use to reduce peoples' vulnerabilities. The College of Direct Support is priced according to the number of individuals served by the purchasing entity plus an annual administrative charge.

Mandatory Reporters of Child Abuse and Neglect
Evaluation Questionnaire for Web Site Resources
All States, the District of Columbia, the Commonwealth of Puerto Rico, and the U.S. territories of American Samoa, Guam, the Northern Mariana Islands, and the Virgin Islands have statutes identifying persons who are required to report child maltreatment under specific circumstances. Use the State Statutes Search to learn more about the requirements in a specific State or Territory. Note that statutes are amended frequently. (supplied by the Child Welfare Information Gateway)

Victimization of Persons with Traumatic Brain Injury or Other Disabilities: A Fact Sheet for Professionals
Evaluation Questionnaire for Web Site Resources
This fact sheet was developed for professionals and provides an overview of the topic of victimization of persons with Traumatic Brain Injury (TBI) or other disabilities. (supplied by the National Center for Injury Prevention and Control)

Other

Beach Center on Disability: Communities of Practice
Evaluation Questionnaire for Web Site Resources
The Beach Center on Disability hosts online communication tools called Communities of Practice (CoP). The goal is to have families, service providers, and researchers learn from one another by sharing work and life lessons. The CoP differs from typical blogs and discussion boards in that members of the community can join in the conversation as it is taking place or read and comment later. A facilitator monitors and weaves together multiple conversations to keep participants engaged. Membership is free, and members have access to additional features including meeting space for ongoing discussions and an online library. Current communities available include Early Childhood Family Support and Family Support Policy.

Beach Center on Disability Newsletter
Evaluation Questionnaire for Web Site Resources
This newsletter is filled with useful information various issues affecting one-stop centers as well as a true story about a person with multiple disabilities.

Becoming a Person Centered System
Evaluation Questionnaire for Web Site Resources
This report from the National Association of State Directors of Developmental Disabilities Services is the first in a series on a system change collaborative with state developmental disability agencies. In each location the goal has been consistent, to create person centered systems that support person directed services. This report includes a brief overview of central ideas including: learning what is and is not working, using value-based skills to drive change, improve quality of life with skills, quality management, and organizational development tools. (supplied by the Clearinghouse for Home and Community Based Services)

Business Planning Tools for Aging and Disability Resource Centers Adobe Acrobat Document
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This is an issue brief developed by the Lewin Group for the Aging and Disability Resource Centers (ADRC). It details business planning for new organizations and centers and would be useful to new one-stop centers. (Aging and Disability Resource Centers Technical Assistance Exchange)

Livable Communities Proceedings Adobe Acrobat Document
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These are the proceedings from a news conference hosted by the National Council on Disability and AARP at AARP world headquarters in Washington, DC. The event included two expert panel discussions. Panelists commented on the report findings and shared their views about what adults with disabilities and seniors need in order to live in the community with independence, choice, and control, and what the public and private sectors as well as consumers can do to help communities become more livable.

National Disability Policy: A Progress Report
Evaluation Questionnaire for Web Site Resources
Released in January 2008, this report from the National Council on Disability (NCD) covers the period from December 2005 through December 2006. It reviews federal policy activities by issue areas, noting progress and making recommendations to the executive and legislative branches of the Federal Government. (supplied by the National Council on Disability)

Rehabilitation Services Administration State Liaisons List
Evaluation Questionnaire for Web Site Resources
This list of state liaisons and their contact information should be used for questions or concerns regarding the following programs under the Rehabilitation Act:

  • the vocational rehabilitation (VR) program, established under Title I;
  • the supported employment (SE) program, established under Title VI, part B;
  • the independent living (IL) program, authorized under Title VII, part B; and
  • the independent living services program for older individuals who are blind (OIB), established under Title VII, Chapter 2.
(supplied the U.S. Department of Education)

State Resources Available to Americans and/or Immigrants with Disabilities Microsoft Word Document
 Evaluation Questionnaire for Web Site Resources
This document was compiled by a legal consultant following a topical teleconference on responding to the needs of immigrants and foreign language-speaking individuals. The document contains state-by-state resources which are available to individuals with disabilities.

The State of Disability in America
Evaluation Questionnaire for Web Site Resources
This publication is an evaluation of the disability experience in America by the Life Without Limits Project, formerly known as the Big Sky Project. The primer, an examination and consolidation of current and existing research on the overall state of affairs for individuals with disabilities, includes chapters on disability rights, healthcare, education, employment, housing, and organizing for change. It also includes personal stories and quotes from disability rights advocates and trail blazers. (supplied by United Cerebral Palsy)
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